共 118 条
[1]
Ringel SP(1993)The natural history of amyotrophic lateral sclerosis Neurology. 43 1316-1322
[2]
Murphy JR(2018)Improving symptom management for people with amyotrophic lateral sclerosis Muscle Nerve 57 20-24
[3]
Alderson MK(2000)Development of a patient-specific questionnaire in motor neurone disease (MND): the MND dyspnea rating scale (MDRS) J Neurol Sci 180 86-93
[4]
Bryan W(2014)The impact of physical impairment on emotional well-being in ALS Amyotroph Lateral Scler Frontotemporal Degener 15 392-397
[5]
England JD(2018)The multidimensional nature of dyspnoea in amyotrophic lateral sclerosis patients with chronic respiratory failure: air hunger, anxiety and fear Resp Med 145 1-7
[6]
Miller RG(2007)Respiratory system abnormalities and clinical milestones for patients with amyotrophic lateral sclerosis with emphasis on survival Amyotroph Lateral Scler 8 36-41
[7]
Nicholson K(2016)Assessment of pulmonary function in amyotrophic lateral sclerosis: when can polygraphy help evaluate the need for non-invasive ventilation? J Neurol Neurosurg Psychiatry 87 1022-1026
[8]
Murphy A(2006)Effects of non-invasive ventilation on survival and quality of life in patients with amyotrophic lateral sclerosis: a randomized controlled trial Lancet Neurol 5 140-147
[9]
McDonnell E(2018)Dyspnea in amyotrophic lateral sclerosis (ALS): Rasch-based development and validation of a patient-reported outcome (DALS-15) J Pain Symptom Manag 56 736-745
[10]
Shapiro J(2007)The Rasch measurement model in rheumatology: what is it and why use it? When should it be applied, and what should one look for in a Rasch paper? Arthritis Rheum 57 1358-1362