Exploring the inclusion of under-served groups in trials methodology research: an example from ethnic minority populations’ views on deferred consent

[21] George E(2001)Interviews with patients, family, and caregivers in amyotrophic lateral sclerosis: comparing needs Journal of Palliative Care. 17 236-81

[22] Hurford WE(2001)Do surrogate decision makers provide accurate consent for intensive care research? Chest. 119 603-1712

[23] Druml C(2002)Patient, Physician, and Family Member Understanding of Living Wills American Journal of Respiratory and Critical Care Medicine. 166 1430-359

[24] Larkin ME(2017)Does experience matter? Implications for community consultation for research in emergency settings AJOB Empirical Bioethics. 8 75-60

[25] Beauharnais CC(2009)Patients' preferences for enrolment into critical-care trials Intensive Care Medicine. 35 1703-897

[26] Magyar K(2003)Attitudes of Emergency Department Patients and Visitors Regarding Emergency Exception from Informed Consent in Resuscitation Research, Community Consultation, and Public Notification Academic Emergency Medicine. 10 352-349

[27] Macey L(2007)African Americans and their distrust of the health care system: healthcare for diverse populations Journal of Cultural Diversity. 14 56-e19759e

[28] Grennan KB(2010)More than Tuskegee: understanding mistrust about research participation Journal of Health Care for the Poor and Underserved. 21 879-70

[29] Boykin EE(2020)Patient and Surrogate Postenrollment Perspectives on Research Using the Exception From Informed Consent: An Integrated Survey Annals of Emergency Medicine. 76 343-1090

[30] Russell SJ(2019)Public Approval of Exception From Informed Consent in Emergency Clinical Trials: A Systematic Review of Community Consultation Surveys JAMA Network Open 2 e197591-SS71

[21] George E(2001)Interviews with patients, family, and caregivers in amyotrophic lateral sclerosis: comparing needs Journal of Palliative Care. 17 236-81

[22] Hurford WE(2001)Do surrogate decision makers provide accurate consent for intensive care research? Chest. 119 603-1712

[23] Druml C(2002)Patient, Physician, and Family Member Understanding of Living Wills American Journal of Respiratory and Critical Care Medicine. 166 1430-359

[24] Larkin ME(2017)Does experience matter? Implications for community consultation for research in emergency settings AJOB Empirical Bioethics. 8 75-60

[25] Beauharnais CC(2009)Patients' preferences for enrolment into critical-care trials Intensive Care Medicine. 35 1703-897

[26] Magyar K(2003)Attitudes of Emergency Department Patients and Visitors Regarding Emergency Exception from Informed Consent in Resuscitation Research, Community Consultation, and Public Notification Academic Emergency Medicine. 10 352-349

[27] Macey L(2007)African Americans and their distrust of the health care system: healthcare for diverse populations Journal of Cultural Diversity. 14 56-e19759e

[28] Grennan KB(2010)More than Tuskegee: understanding mistrust about research participation Journal of Health Care for the Poor and Underserved. 21 879-70

[29] Boykin EE(2020)Patient and Surrogate Postenrollment Perspectives on Research Using the Exception From Informed Consent: An Integrated Survey Annals of Emergency Medicine. 76 343-1090

[30] Russell SJ(2019)Public Approval of Exception From Informed Consent in Emergency Clinical Trials: A Systematic Review of Community Consultation Surveys JAMA Network Open 2 e197591-SS71