Co-production and evaluation of an elearning resource to improve African-Caribbean families' knowledge about schizophrenia and engagement with services: A pilot randomised controlled trial protocol

被引：6

作者：

Lemetyinen H. ^{[1
]}

Onwumere J. ^{[2
,3
]}

Drake R.J. ^{[1
,4
]}

Abel K. ^{[1
,4
]}

Haigh C. ^{[5
]}

Moulton G. ^{[6
]}

Edge D. ^{[1
]}

机构：

[1] Division of Psychology and Mental Health, Faculty of Biology, Medicine and Health, School of Health Sciences, University of Manchester, Manchester

[2] King's College London, Department of Psychology, Institute of Psychiatry, Psychology and Neuroscience, London

[3] South London and Maudsley Nhs Foundation Trust, Bethlem Royal Hospital, Monks Orchard Road, Beckenham, Kent

[4] Greater Manchester Mental Health Nhs Foundation Trust, Bury New Road, Prestwich, Manchester

[5] Manchester Metropolitan University, Brook Building, Bonsall Street, Manchester

[6] Division of Informatics, Imaging and Data Sciences, Faculty of Biology, Medicine and Health, University of Manchester, Manchester

来源：

Pilot and Feasibility Studies | / 4卷 / 1期

关键词：

African-Caribbean; Digital health; E-learning; Psychosis; Schizophrenia;

D O I：

10.1186/s40814-018-0368-3

中图分类号：

学科分类号：

摘要：

Background: A higher proportion of African-Caribbean people in the UK are diagnosed with schizophrenia spectrum disorders than other ethnic groups. High levels of shame and stigma at individual and community levels contribute to delayed access to care, potentially increasing the duration of untreated psychosis and so worsening outcomes. Inferior access, more coercive care, and worse outcomes have created a ecircle of fearf of mental health services within African- Caribbean communities. This further discourages early engagement with statutory services and increases the burden of care for families living with schizophrenia. Providing tailored and relevant information about psychosis (psychoeducation) has the potential for improving outcomes for patients and families. However, there are no culturally appropriate psychoeducation programmes for African-Caribbeans in the UK. We aim to determine whether an e-learning resource, co-produced with African- Caribbean stakeholders to improve knowledge about psychoses, would be culturally acceptable and accessible to members of this population. Methods: A pilot randomised controlled trial of the feasibility of co-producing and testing a novel e-learning resource to improve knowledge about and attitudes towards schizophrenia in African-Caribbean families. We will seek to recruit 40 participants, aged ≥ 16 years, either to receive the intervention or as controls. They will self-refer or be referred via inpatient and wellbeing services, family and carersf forums, statutory community mental health teams, and voluntary sector/non-governmental agencies (NGOs). Participants will complete the Ca-KAP, ASMI, and SF-12. Acceptability will be explored qualitatively via focus groups and individual semi-structured interviews. Discussion: The proposed trial will demonstrate the feasibility of conducting a fully powered RCT to evaluate the efficacy of an e-learning resource about schizophrenia with African-Caribbean families. Qualitative work will explore the interventionfs accessibility and barriers/facilitators to participation, including attitudes to randomisation. These data will facilitate further refinement of the intervention. Trial registration: ISRCTN11394005, retrospectively registered 20/03/2018. © The Author(s). 2018.

引用

共 54 条

[31]

Chiu T., Marziali E., Colantonio A., Carswell A., Gruneir M., Tang M., Et al., Internet-based caregiver support for Chinese Canadians taking care of a family member with Alzheimer disease and related dementia, Can J Aging / la Rev Can du Vieil, 28, 4, (2009)

[32]

Bucci S., Barrowclough C., Ainsworth J., Morris R., Berry K., Machin M., Et al., Using mobile technology to deliver a cognitive behaviour therapy-informed intervention in early psychosis (Actissist): Study protocol for a randomised controlled trial, Trials, 16, (2015)

[33]

Blusi M., Asplund K., Jong M., Older family carers in rural areas: Experiences from using caregiver support services based on information and communication technology (ICT), Eur J Ageing, 10, pp. 191-199, (2013)

[34]

Katsuki F., Takeuchi H., Konishi M., Sasaki M., Murase Y., Naito A., Et al., Pre-post changes in psychosocial functioning among relatives of patients with depressive disorders after Brief Multifamily Psychoeducation: A pilot study, BMC Psychiatry, 11, 1, (2011)

[35]

Katz M.R., Irish J.C., Devins G.M., Development and pilot testing of a psychoeducational intervention for oral cancer patients, Psychooncology, 13, pp. 624-653, (2004)

[36]

Alvidrez J., Snowden L.R., Rao S.M., Boccellari A., Psychoeducation to address stigma in Black adults referred for mental health treatment: A randomized pilot study, J Community Ment Heal, 45, pp. 127-136, (2009)

[37]

Jones L., Wells K., Strategies for Academic and Clinician Engagement in Community-Participatory Partnered Research, JAMA, 297, 4, (2007)

[38]

Edge D., Grey P., An assets-based approach to co-producing Culturallyadapted Family Intervention (CaFI) with African-Caribbeans diagnosed with schizophrenia and their families, Ethn Dis Spec Issue

[39]

Roberts L., Turner K., Williamson T., Briefing Notes for Researchers: Public Involvement in NHS, Public Health and Social Care Research, (2012)

[40]

Mann F., Fisher H.L., Johnson S., A systematic review of ethnic variations in hospital admission and compulsory detention in first-episode psychosis, J Ment Health, 23, 4, pp. 205-211, (2014)

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