Decision-making about gene therapy in transfusion dependent thalassemia

被引：0
|
作者：
Maa-Ohui Quarmyne
Diana Ross
Cynthia Sinha
Nitya Bakshi
Jeanne Boudreaux
Lakshmanan Krishnamurti
机构：
[1] Phoenix Children’s Hospital,Center for Cancer and Blood Disorder
[2] Emory University,Aflac Cancer and Blood Disorders Center, Department of Pediatrics
[3] Children’s Healthcare of Atlanta,Aflac Cancer and Blood Disorders Center
[4] Yale School of Medicine,Yale Pediatric Hematology Oncology and Bone Marrow Transplant
[5] Yale University,undefined
来源：
BMC Pediatrics | / 22卷
关键词：
Decision-making; Transfusion dependent thalassemia; Gene therapy; Qualitative;
D O I：
暂无
中图分类号：
学科分类号：
摘要：
引用
收藏
相关论文
共 50 条
  • [1] Decision-making about gene therapy in transfusion dependent thalassemia
    Quarmyne, Maa-Ohui
    Ross, Diana
    Sinha, Cynthia
    Bakshi, Nitya
    Boudreaux, Jeanne
    Krishnamurti, Lakshmanan
    BMC PEDIATRICS, 2022, 22 (01)
  • [2] Hurdles to the Adoption of Gene Therapy as a Curative Option for Transfusion-Dependent Thalassemia
    Thuret, Isabelle
    Ruggeri, Annalisa
    Angelucci, Emanuele
    Chabannon, Christian
    STEM CELLS TRANSLATIONAL MEDICINE, 2022, 11 (04) : 407 - 414
  • [3] Gene therapies, uncertainty, and decision-making: thinking about the last mile at the first step
    Frederix, Gerardus W. J.
    Ham, Renske M. T. ten
    EXPERT REVIEW OF PHARMACOECONOMICS & OUTCOMES RESEARCH, 2023, 23 (08) : 853 - 856
  • [4] Development of a haemophilia A gene therapy shared decision-making tool for clinicians
    Limjoco, Jacqueline
    Thornburg, Courtney D.
    HAEMOPHILIA, 2023, 29 (05) : 1184 - 1190
  • [5] PSYCHOLOGICAL FACTORS OF DECISION-MAKING ABOUT VACCINATION
    Solondaev, Vladimir K.
    Koneva, Elena, V
    Chernaia, Natalia L.
    SIBIRSKIY PSIKHOLOGICHESKIY ZHURNAL-SIBERIAN JOURNAL OF PSYCHOLOGY, 2016, (59): : 125 - 136
  • [6] MAKING DECISIONS ABOUT DECISION-MAKING: CONSCIENCE, REGULATION, AND THE LAW
    Miola, Jose
    MEDICAL LAW REVIEW, 2015, 23 (02) : 263 - 282
  • [7] Decision-making in drug-dependent patients
    Mogedas Valladares, Ana Isabel
    Alameda Bailen, Jose Ramon
    ADICCIONES, 2011, 23 (04) : 277 - 287
  • [8] Collaborative decision-making: A framework for decision-making about life-sustaining treatments in children with medical complexity
    Nageswaran, Savithri
    Gower, William A.
    Golden, Shannon L.
    King, Nancy M. P.
    PEDIATRIC PULMONOLOGY, 2022, 57 (12) : 3094 - 3103
  • [9] Parental perspectives on decision-making about hypospadias surgery
    Chan, K. H.
    Panoch, J.
    Carroll, A.
    Wiehe, S.
    Downs, S.
    Cain, M. P.
    Frankel, R.
    JOURNAL OF PEDIATRIC UROLOGY, 2019, 15 (05) : 449.e1 - 449.e8
  • [10] Exploring perceptions of and decision-making about CFTR modulators
    Landess, Lee
    Prieur, Mary G.
    Brown, Ashley R.
    Dellon, Elisabeth P.
    PEDIATRIC PULMONOLOGY, 2024, 59 (06) : 1614 - 1621
12345