The impact of demographic and clinical characteristics on the trajectories of health-related quality of life among patients with Fabry disease

被引：0
作者：
Solrun Sigurdardottir
Birgitte Bjerkely
Trond G. Jenssen
Per Mathisen
Charlotte von der Lippe
Kristin Ørstavik
Ketil Heimdal
Dag Olav Dahle
Mina Susanne Weedon-Fekjær
Olga Solberg
Hege K. Pihlstrøm
机构：
[1] Oslo University Hospital,Centre for Rare Disorders
[2] Oslo University Hospital,Department of Surgery, Inflammation Medicine and Transplantation, Section of Nephrology
[3] Rikshospitalet HF,Institute of Clinical Medicine, Faculty of Medicine
[4] University of Oslo,Department of Cardiology
[5] Oslo University Hospital,Department of Neurology, Section for Rare Neuromuscular Disorders
[6] Rikshospitalet HF,Department of Medical Genetics
[7] Oslo University Hospital,undefined
[8] Rikshospitalet HF,undefined
[9] Oslo University Hospital,undefined
[10] Rikshospitalet HF,undefined
来源：
Orphanet Journal of Rare Diseases | / 16卷
关键词：
Quality of life; HRQOL; SF-36; Longitudinal studies; Fabry disease; ERT; Kidney disease; Neuropathic pain;
D O I：
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