Ethics framework for citizen science and public and patient participation in research

[1] Bonney R(2016)Can citizen science enhance public understanding of science? Public Underst Sci 25 2-16

[2] Phillips TB(2014)Citizen science as seen by scientists: methodological, epistemological and ethical dimensions Public Underst Sci 23 107-120

[3] Ballard HL(1969)A ladder of citizen participation J Am Inst Plann 35 216-224

[4] Enck JW(2009)Patients as partners in responsive research: methodological notions for collaborations in mixed research teams Qual Health Res 19 401-415

[5] Riesch H(2017)Participatory bioethics research and its social impact: the case of coercion reduction in psychiatry Bioethics 31 144-152

[6] Potter C(2016)Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives BMC Med Ethics 17 1-17

[7] Arnstein SR(2019)The rise of citizen science in health and biomedical research Am J Bioethics 19 3-14

[8] Abma TA(2006)User involvement leads to more ethically sound research Clin Ethics 1 95-100

[9] Nierse CJ(2019)Ethics of care in participatory health research: mutual responsibility in collaboration with co-researchers Educ Action Res 27 286-302

[10] Widdershoven GAM(2021)A qualitative evaluation of coproduction of research: if you do it properly, you will get turbulence Health Expect 00 1-9

[1] Bonney R(2016)Can citizen science enhance public understanding of science? Public Underst Sci 25 2-16

[2] Phillips TB(2014)Citizen science as seen by scientists: methodological, epistemological and ethical dimensions Public Underst Sci 23 107-120

[3] Ballard HL(1969)A ladder of citizen participation J Am Inst Plann 35 216-224

[4] Enck JW(2009)Patients as partners in responsive research: methodological notions for collaborations in mixed research teams Qual Health Res 19 401-415

[5] Riesch H(2017)Participatory bioethics research and its social impact: the case of coercion reduction in psychiatry Bioethics 31 144-152

[6] Potter C(2016)Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives BMC Med Ethics 17 1-17

[7] Arnstein SR(2019)The rise of citizen science in health and biomedical research Am J Bioethics 19 3-14

[8] Abma TA(2006)User involvement leads to more ethically sound research Clin Ethics 1 95-100

[9] Nierse CJ(2019)Ethics of care in participatory health research: mutual responsibility in collaboration with co-researchers Educ Action Res 27 286-302

[10] Widdershoven GAM(2021)A qualitative evaluation of coproduction of research: if you do it properly, you will get turbulence Health Expect 00 1-9