Understandings of genomic research in developing countries: a qualitative study of the views of MalariaGEN participants in Mali

[1] Edwards SJ(1998)Informed consent for clinical trials: in search of the “best” method Soc Sci Med 47 1825-1840

[2] Lilford RJ(2004)Interventions to improve research participants’ understanding in informed consent for research: a systematic review JAMA 292 1593-1601

[3] Thornton J(2012)The quality of informed consent: mapping the landscape. A review of empirical data from developing and developed countries J Med Ethics 38 356-365

[4] Hewison J(2009)Surrogate consent for genomics research in intensive care Am J Crit Care 18 418-426

[5] Flory J(2005)‘Even if they ask you to stand by a tree all day, you will have to do it (laughter)…!’: community voices on the notion and practice of informed consent for biomedical research in developing countries Soc Sci Med 61 443-454

[6] Emanuel E(2013)Consent and community engagement in diverse research contexts J Empir Res Hum Res Ethics 8 1-18

[7] Mandava A(2006)The Informed Consent Process in a Rural African Setting: A Case Study of the Kassena-Nankana District of Northern Ghana IRB 28 1-6

[8] Pace C(2006)Voluntary participation and informed consent to international genetic research Am J Public Health 96 1989-1995

[9] Campbell B(2009)Ethical data release in genome-wide association studies in developing countries PLoS Med 6 15-135

[10] Emanuel E(2009)Tailoring consent to context: designing an appropriate consent process for a biomedical study in a low income setting PLoS Negl Trop Dis 3 128-96

[1] Edwards SJ(1998)Informed consent for clinical trials: in search of the “best” method Soc Sci Med 47 1825-1840

[2] Lilford RJ(2004)Interventions to improve research participants’ understanding in informed consent for research: a systematic review JAMA 292 1593-1601

[3] Thornton J(2012)The quality of informed consent: mapping the landscape. A review of empirical data from developing and developed countries J Med Ethics 38 356-365

[4] Hewison J(2009)Surrogate consent for genomics research in intensive care Am J Crit Care 18 418-426

[5] Flory J(2005)‘Even if they ask you to stand by a tree all day, you will have to do it (laughter)…!’: community voices on the notion and practice of informed consent for biomedical research in developing countries Soc Sci Med 61 443-454

[6] Emanuel E(2013)Consent and community engagement in diverse research contexts J Empir Res Hum Res Ethics 8 1-18

[7] Mandava A(2006)The Informed Consent Process in a Rural African Setting: A Case Study of the Kassena-Nankana District of Northern Ghana IRB 28 1-6

[8] Pace C(2006)Voluntary participation and informed consent to international genetic research Am J Public Health 96 1989-1995

[9] Campbell B(2009)Ethical data release in genome-wide association studies in developing countries PLoS Med 6 15-135

[10] Emanuel E(2009)Tailoring consent to context: designing an appropriate consent process for a biomedical study in a low income setting PLoS Negl Trop Dis 3 128-96