Health-Related Quality of Life in Individuals with Down Syndrome: Results from a Non-Interventional Longitudinal Multi-National Study

被引:0
|
作者
Diana Rofail
Daniel Froggatt
Rafael de la Torre
Jamie Edgin
Priya Kishnani
Renaud Touraine
Sarah Whitwham
Lisa Squassante
Omar Khwaja
Xavier Liogier D’Ardhuy
机构
[1] Roche Products Limited,
[2] Hospital del Mar Medical Research Institute (IMIM),undefined
[3] University of Arizona,undefined
[4] Duke University,undefined
[5] CHU-Hopital Nord,undefined
[6] Cornwall Partnership NHS Foundation Trust,undefined
[7] Roche Innovation Center Basel,undefined
[8] F. Hoffmann-La Roche Ltd,undefined
来源
Advances in Therapy | 2017年 / 34卷
关键词
Down syndrome; Health-related quality of life; HRQoL; KIDSCREEN-27; Longitudinal study; Non-interventional study; Parent-report; Test-retest reliability;
D O I
暂无
中图分类号
学科分类号
摘要
引用
收藏
页码:2058 / 2069
页数:11
相关论文
共 50 条
  • [41] Health-related quality of life is compromised in individuals with spina bifida: results from qualitative and quantitative studies
    Rofail, Diana
    Maguire, Laura
    Kissner, Marion
    Colligs, Antje
    Abetz-Webb, Linda
    EUROPEAN JOURNAL OF OBSTETRICS & GYNECOLOGY AND REPRODUCTIVE BIOLOGY, 2014, 181 : 214 - 222
  • [42] Health-related quality of life results from the phase III CheckMate 067 study
    Schadendorf, Dirk
    Larkin, James
    Wolchok, Jedd
    Hodi, F. Stephen
    Chiarion-Sileni, Vanna
    Gonzalez, Rene
    Rutkowski, Piotr
    Grob, Jean-Jacques
    Cowey, C. Lance
    Lao, Christopher
    Wagstaff, John
    Callahan, Margaret K.
    Postow, Michael A.
    Smylie, Michael
    Ferrucci, Pier Francesco
    Dummer, Reinhard
    Hill, Andrew
    Taylor, Fiona
    Sabater, Javier
    Walker, Dana
    Kotapati, Srividya
    Abernethy, Amy
    Long, Georgina V.
    EUROPEAN JOURNAL OF CANCER, 2017, 82 : 80 - 91
  • [43] Health-related quality of life (HRQOL) in family members of cancer victims: results from a longitudinal intervention study in Norway and Sweden
    Ringdal, GI
    Ringdal, K
    Jordhoy, MS
    Ahlner-Elmqvist, M
    Jannert, M
    Kaasa, S
    PALLIATIVE MEDICINE, 2004, 18 (02) : 108 - 120
  • [44] Sports participation and health-related quality of life: a longitudinal observational study in children
    Moeijes, Janet
    van Busschbach, Jooske T.
    Bosscher, Ruud J.
    Twisk, Jos W. R.
    QUALITY OF LIFE RESEARCH, 2019, 28 (09) : 2453 - 2469
  • [45] Yoga and nutritional therapies for promoting health-related quality of life in persons with metabolic syndrome-An interventional observational study
    Sorout, Jitender
    Kacker, Sudhanshu
    Saboo, Neha
    Kumar, Munesh
    JOURNAL OF FAMILY MEDICINE AND PRIMARY CARE, 2024, 13 (08) : 3017 - 3025
  • [46] Prospective Associations of Physical Activity and Health-Related Physical Fitness in Adolescents with Down Syndrome: The UP&DOWN Longitudinal Study
    Suarez-Villadat, Borja
    Villagra, Ariel
    Veiga, Oscar L.
    Cabanas-Sanchez, Veronica
    Izquierdo-Gomez, Rocio
    INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, 2021, 18 (11)
  • [47] Sports participation and health-related quality of life: a longitudinal observational study in children
    Janet Moeijes
    Jooske T. van Busschbach
    Ruud J. Bosscher
    Jos W. R. Twisk
    Quality of Life Research, 2019, 28 : 2453 - 2469
  • [48] Oral Health-Related Quality of Life (OHRQoL) of Children with Down Syndrome and Their Families: A Cross-Sectional Study
    AlJameel, AlBandary Hassan
    AlKawari, Huda
    CHILDREN-BASEL, 2021, 8 (11):
  • [49] Post COVID-19 condition and health-related quality of life: a longitudinal cohort study in the Belgian adult population
    Pierre Smith
    Robby De Pauw
    Dieter Van Cauteren
    Stefaan Demarest
    Sabine Drieskens
    Laura Cornelissen
    Brecht Devleesschauwer
    Karin De Ridder
    Rana Charafeddine
    BMC Public Health, 23
  • [50] Health-related quality of life in adult coeliac disease in Germany:: results of a national survey
    Haeuser, Winfried
    Gold, Joachim
    Stein, Juergen
    Caspary, Wolfgang F.
    Stallmach, Andreas
    EUROPEAN JOURNAL OF GASTROENTEROLOGY & HEPATOLOGY, 2006, 18 (07) : 747 - 754