Health-Related Quality of Life in Individuals with Down Syndrome: Results from a Non-Interventional Longitudinal Multi-National Study

被引：0
|
作者：
Diana Rofail
Daniel Froggatt
Rafael de la Torre
Jamie Edgin
Priya Kishnani
Renaud Touraine
Sarah Whitwham
Lisa Squassante
Omar Khwaja
Xavier Liogier D’Ardhuy
机构：
[1] Roche Products Limited,
[2] Hospital del Mar Medical Research Institute (IMIM),undefined
[3] University of Arizona,undefined
[4] Duke University,undefined
[5] CHU-Hopital Nord,undefined
[6] Cornwall Partnership NHS Foundation Trust,undefined
[7] Roche Innovation Center Basel,undefined
[8] F. Hoffmann-La Roche Ltd,undefined
来源：
Advances in Therapy | 2017年 / 34卷
关键词：
Down syndrome; Health-related quality of life; HRQoL; KIDSCREEN-27; Longitudinal study; Non-interventional study; Parent-report; Test-retest reliability;
D O I：
暂无
中图分类号：
学科分类号：
摘要：
引用
收藏
页码：2058 / 2069
页数：11
相关论文
共 50 条
  • [31] Health-Related Quality of Life in Caregivers of Individuals With Dementia From Colombia
    Arango-Lasprilla, Juan Carlos
    Lehan, Tara
    Drew, Allison
    Moreno, Alexander
    Deng, Xiaoyan
    Lemos, Mariantonia
    AMERICAN JOURNAL OF ALZHEIMERS DISEASE AND OTHER DEMENTIAS, 2010, 25 (07): : 556 - 561
  • [32] Health-related quality of life and medication use among individuals with Angelman syndrome
    Khan, Nasreen
    Cabo, Raquel D.
    Burdine, Rebecca
    Tan, Wen-Hann J.
    Keary, Christopher
    Ochoa-Lubinoff, Cesar M.
    Bird, Lynne
    STARS Investigators
    QUALITY OF LIFE RESEARCH, 2023, 32 (07) : 2059 - 2067
  • [33] Examination of Correlates to Health-Related Quality of Life in Individuals with Fragile X Syndrome
    Coffman, Marika C.
    Shaffer, Rebecca C.
    Schmitt, Lauren M.
    Dominick, Kelli C.
    Pedapati, Ernest
    Wang, Angel
    Berry-Kravis, Elizabeth
    Tartaglia, Nicole
    Erickson, Craig A.
    BRAIN SCIENCES, 2020, 10 (04)
  • [34] The effect of lung transplantation on health-related quality of life - A longitudinal study
    TenVergert, EM
    Essink-Bot, ML
    Geertsma, A
    van Enckevort, PJ
    de Boer, WJ
    van der Bij, W
    CHEST, 1998, 113 (02) : 358 - 364
  • [35] Health-related quality of life from 20 to 32 years of age in very low birth weight individuals: a longitudinal study
    Elias Kjølseth Berdal
    Arnt Erik Karlsen Wollum
    Ingrid Marie Husby Hollund
    Johanne Marie Iversen
    Eero Kajantie
    Kari Anne I. Evensen
    Health and Quality of Life Outcomes, 20
  • [36] Determining the health-related quality of life in individuals with haemophilia in developing economies: results from the Brazilian population
    Salomon, T.
    Chaves, D. G.
    Brener, S.
    Martins, P. R. J.
    Mambrini, J. V. M.
    Peixoto, S. V.
    HAEMOPHILIA, 2017, 23 (01) : 42 - 49
  • [37] Longitudinal course and predictors of health-related quality of life, mental health, and fatigue, in non-hospitalized individuals with or without post COVID-19 syndrome
    Kirchberger, Inge
    Meisinger, Christine
    Warm, Tobias D.
    Hyhlik-Duerr, Alexander
    Linseisen, Jakob
    Gosslau, Yvonne
    HEALTH AND QUALITY OF LIFE OUTCOMES, 2024, 22 (01)
  • [38] Health-related quality of life from 20 to 32 years of age in very low birth weight individuals: a longitudinal study
    Berdal, Elias Kjolseth
    Wollum, Arnt Erik Karlsen
    Hollund, Ingrid Marie Husby
    Iversen, Johanne Marie
    Kajantie, Eero
    Evensen, Kari Anne, I
    HEALTH AND QUALITY OF LIFE OUTCOMES, 2022, 20 (01)
  • [39] Interactions between Obstructive Sleep Apnea Syndrome Severity, Obesity, Sex Difference and Attention-Deficit/Hyperactivity Disorder on Health-Related Quality of Life: A Non-Interventional Prospective Observational Study
    Chen, Yu-Hsuan
    Wu, Ming-Feng
    Wen, Chih-Yu
    Chang, Shih-Pei
    Lin, Ching-Yi
    Chen, Yi-Chan
    Lin, Ching-Cheng
    Chen, Hui-Chen
    Huang, Wei-Chang
    Chang, Kai-Ming
    BIOMEDICINES, 2022, 10 (07)
  • [40] Health-related quality of life and family functioning of primary caregivers of children with down syndrome
    Rozensztrauch, Anna
    Wieczorek, Karolina
    Twardak, Iwona
    Smigiel, Robert
    FRONTIERS IN PSYCHIATRY, 2023, 14
12345