Development of a Core outcome set for fetal Myelomeningocele (COSMiC): study protocol

被引：0
作者：
Samar Altoukhi
Clare L. Whitehead
Greg Ryan
Jan Deprest
Luc Joyeux
Katie Gallagher
James Drake
Paige Church
Daphne Horn
Yenge Diambomba
Jose C. A. Carvalho
Tim Van Mieghem
机构：
[1] Mount Sinai Hospital and University of Toronto,Department of Obstetrics and Gynaecology
[2] King Fahad Medical City,Department of Obstetrics and Gynaecology
[3] University of Adelaide,Department of Obstetrics & Gynaecology
[4] University of Melbourne,Department of Obstetrics & Gynaecology
[5] Mount Sinai Hospital,Ontario Fetal Centre
[6] University Hospitals Leuven,Department of Obstetrics and Gynaecology
[7] University College London,Institute of Obstetrics and Gynaecology, Women’s Health
[8] University College London,Institute of Child Health
[9] Hospital for Sick Children and University of Toronto,Department of Neurosurgery
[10] Holland-Bloorview,Department of Neonatology
[11] Sunnybrook Health Centre and University of Toronto,Department of Medical Informatics
[12] Mount Sinai Hospital and University of Toronto,Department of Neonatology
[13] Mount Sinai Hospital and University of Toronto,Department of Anaesthesia
[14] Mount Sinai Hospital and University of Toronto,undefined
来源：
Trials | / 21卷
关键词：
Spina bifida; Myelomeningocele; Myeloschisis; Fetal surgery; Fetoscopic surgery; Core outcome set; Delphi study; Open spina bifida;
D O I：
暂无
中图分类号：
学科分类号：
摘要：
引用
收藏
相关论文
共 131 条
[1]  
Mitchell LE(2004)Spina bifida Lancet 364 1885-1895
[2]  
Adzick NS(2012)Improved survival among children with spina bifida in the United States J Pediatr 161 1132-1137
[3]  
Melchionne J(2019)Long-term neuroimaging and neurological outcome of fetal spina bifida aperta after postnatal surgical repair Ultrasound Obstet Gyneco 53 309-313
[4]  
Pasquariello PS(2014)Population-based study to determine mortality in spina bifida: New York State Congenital Malformations Registry, 1983 to 2006 Birth Defects Res A Clin Mol Teratol 100 563-575
[5]  
Sutton LN(1990)The paralysis associated with myelomeningocele: clinical and experimental data implicating a preventable spinal cord injury Neurosurgery 26 987-992
[6]  
Whitehead AS(2018)Trends in incidence and long-term outcomes of myelomeningocele in British Columbia Childs Nerv Syst 34 717-724
[7]  
Shin M(2012)Fetal surgery for myelomeningocele: progress and perspectives Dev Med Child Neurol 54 8-14
[8]  
Kucik JE(1984)Intrauterine treatment of spina bifida: primate model Z Kinderchir 39 259-261
[9]  
Siffel C(1993)Intrauterine repair of experimental surgically created dysraphism Neurosurgery 32 1005-1010
[10]  
Lu C(1995)Creation of myelomeningocele in utero: a model of functional damage from spinal cord exposure in fetal sheep J Pediatr Surg 30 1028-1032
12345678910