My Sister’s Keeper: Sibling Social Support and Chronic Illness

被引:9
作者
Williams K.M. [1 ]
机构
[1] Communication Arts & Sciences, Penn State Berks, Franco 149, Reading, PA
关键词
Chronic illness; Family; Narrative; Siblings; Social support; Stories;
D O I
10.1007/s10912-016-9394-4
中图分类号
学科分类号
摘要
Through her stories and mine, my sister and I allow the outside world to see the ways in which we grapple with a critical health incident along her journey of living with lupus. Lupus is a chronic, autoimmune disease that is difficult to recognize and to diagnose. The ambiguous nature of the disease creates considerable confusion for the ill person as well as her support system. Using an illness narrative, I analyze a real life event linked to chronic illness, invisibility, living loss, liminality and family—and more specifically, to social support within the sibling relationship. © 2016, Springer Science+Business Media New York.
引用
收藏
页码:135 / 143
页数:8
相关论文
共 27 条
  • [1] Austin W.J., Relational Ethics, The SAGE Encyclopedia of Qualitative Research Methods, pp. 749-750, (2008)
  • [2] Bedford V.H., Relationships between Adult Siblings, In Interpersonal Relationships, edited by Ann E. Auhagen and Maria von Salisch, 119-141. Gottingen, Germany, (1993)
  • [3] Bitner M.J., Booms B.H., Mohr L.A., The Service Encounter: Diagnosing Favorable and Unfavorable Incidents, Journal of Marketing, 54, pp. 71-84, (1990)
  • [4] Boss P., Couden B.A., Ambiguous Loss from Chronic Physical Illness: Clinical Interventions with Individuals, Couples, and Families, Journal of Clinical Psychology, 58, 11, pp. 1351-1360, (2002)
  • [5] Cicirelli V.G., Sibling Relationships across the Lifespan, (1995)
  • [6] Cornwell E.Y., Waite L.J., Social Disconnectedness, Perceived Isolation, and Health among Older Adults, Journal of Health and Social Behaviors, 50, 1, pp. 31-48, (2008)
  • [7] Ellis C., Bochner A.P., Autoethnography, Personal Narrative, Reflexivity, Handbook of Qualitative Research, pp. 733-768, (2000)
  • [8] Analyzing Analytic Autoethnography: An Autopsy, Journal of Contemporary Ethnography, 35, 4, pp. 429-449, (2006)
  • [9] Ellis C., Adams T.E., Bochner A.P., Autoethnography: An overview, Forum: Qualitative Social Research 12 (1): Art, (2011)
  • [10] Frank A.W., The Wounded Storyteller: Body, Illness, and Ethics, (1995)