Connected health for growth hormone treatment research and clinical practice: learnings from different sources of real-world evidence (RWE)—large electronically collected datasets, surveillance studies and individual patients’ cases

被引:0
作者
Nea Boman
Luis Fernandez-Luque
Ekaterina Koledova
Marketta Kause
Risto Lapatto
机构
[1] University of Helsinki and Helsinki University Central Hospital,Paediatric Endocrinology, Children’s Hospital
[2] Adhera Health Inc.,Global Medical Affairs Cardiometabolic and Endocrinology
[3] Merck KGaA,Medical Department
[4] Merck Oy Finland (an affiliate of Merck KGaA,undefined
[5] Darmstadt,undefined
[6] Germany),undefined
来源
BMC Medical Informatics and Decision Making | / 21卷
关键词
EHealth; Adherence monitoring; Growth outcomes; Observational study;
D O I
暂无
中图分类号
学科分类号
摘要
引用
收藏
相关论文
共 166 条
[1]  
Price D(2014)Asthma control and management in 8,000 European patients: the REcognise Asthma and LInk to Symptoms and Experience (REALISE) survey NPJ Prim Care Respir Med 24 14009-399
[2]  
Fletcher M(2016)Medication adherence: truth and consequences Am J Med Sci 351 387-314
[3]  
van der Molen T(2011)Medication adherence: WHO cares? Mayo Clin Proc 86 304-227
[4]  
Brown MT(2018)Identifying potentially modifiable factors associated with treatment non-adherence in paediatric growth hormone deficiency: a systematic review Horm Res Paediatr 90 221-643
[5]  
Bussell J(2011)The MS Choices Survey: findings of a study assessing physician and patient perspectives on living with and managing multiple sclerosis Patient Prefer Adherence 5 629-196
[6]  
Dutta S(2013)Understanding the growth hormone therapy adherence paradigm: a systematic review Horm Res Paediatr 79 189-316
[7]  
Davis K(2011)Noncompliance with growth hormone treatment in children is common and impairs linear growth PLoS ONE 6 e16223-148
[8]  
Strong S(2008)Observations of nonadherence to recombinant human growth hormone therapy in clinical practice Clin Ther 30 307-1336
[9]  
Mathew S(2008)Monitoring of concordance in growth hormone therapy Arch Dis Child 93 147-219
[10]  
Brown MT(2012)Diabetes connect: an evaluation of patient adoption and engagement in a web-based remote glucose monitoring program J Diabetes Sci Technol 6 1328-154