Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies

Robling MR(2004)Public attitudes towards the use of primary care patient record data in medical research without consent: a qualitative study J Med Ethics 30 104-109

Hood K(2003)Evaluating and synthesising qualitative research: the need to develop a distinctive approach J Eval Clin Pract 9 179-186

Houston H(2000)Qualitative research in health care: Analysing qualitative data Br Med J 320 114-6

Pill R(1998)Standards for the systematic review of qualitative literature in health services research Qual Health Res 8 341-351

Fay J(2008)A decade of data linkage in Western Australia: strategic design, applications and benefits of the WA data linkage system Aust Health Rev 32 766-777

Evans HM(2000)Monitoring disease burden and preventive behavior with data linkage: cervical cancer among aboriginal people in Manitoba, Canada Am J Public Health 90 1466-1468

Barbour RS(2007)Record linked retrospective cohort study of 4.6 million people exploring ethnic variations in disease: myocardial infarction in South Asians BMC Public Health 7 142-732

Barbour M(2001)Proximate and contextual socioeconomic determinants of mortality: multilevel approaches in a setting with universal health care coverage Am J Epidemiol 154 725-108

Pope C(2011)Administrative record linkage as a tool for public health research Annu Rev Public Health 32 91-316

Ziebland S(2007)Extreme cause-specific mortality in a cohort of adult prisoners—1988 to 2002: a data-linkage study Int J Epidemiol 36 310-10

Robling MR(2004)Public attitudes towards the use of primary care patient record data in medical research without consent: a qualitative study J Med Ethics 30 104-109

Hood K(2003)Evaluating and synthesising qualitative research: the need to develop a distinctive approach J Eval Clin Pract 9 179-186

Houston H(2000)Qualitative research in health care: Analysing qualitative data Br Med J 320 114-6

Pill R(1998)Standards for the systematic review of qualitative literature in health services research Qual Health Res 8 341-351

Fay J(2008)A decade of data linkage in Western Australia: strategic design, applications and benefits of the WA data linkage system Aust Health Rev 32 766-777

Evans HM(2000)Monitoring disease burden and preventive behavior with data linkage: cervical cancer among aboriginal people in Manitoba, Canada Am J Public Health 90 1466-1468

Barbour RS(2007)Record linked retrospective cohort study of 4.6 million people exploring ethnic variations in disease: myocardial infarction in South Asians BMC Public Health 7 142-732

Barbour M(2001)Proximate and contextual socioeconomic determinants of mortality: multilevel approaches in a setting with universal health care coverage Am J Epidemiol 154 725-108

Pope C(2011)Administrative record linkage as a tool for public health research Annu Rev Public Health 32 91-316

Ziebland S(2007)Extreme cause-specific mortality in a cohort of adult prisoners—1988 to 2002: a data-linkage study Int J Epidemiol 36 310-10