A Qualitative Study to Characterize the Humanistic Burden of Kabuki Syndrome in the United States and Canada

被引：0
|
作者：
Christina Theodore-Oklota
Deborah S. Hartman
Deborah L. Hoffman
Hans T. Björnsson
机构：
[1] Ultragenyx Pharmaceutical Inc.,
[2] Takeda Pharmaceuticals,undefined
[3] Johns Hopkins University,undefined
[4] University of Iceland,undefined
[5] Landspitali University Hospital,undefined
来源：
Advances in Therapy | 2022年 / 39卷
关键词：
Kabuki syndrome; Survey; Caregivers; Adolescents; Patient burden; Humanistic burden; Patient research;
D O I：
暂无
中图分类号：
学科分类号：
摘要：
引用
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页码：619 / 631
页数：12
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