What do young people with rheumatic conditions in the UK think about research involvement? A qualitative study

Bate J(2016)Public and patient involvement in paediatric research Arch Dis Child Educ Pract Ed 101 158-161

Ranasinghe N(2017)Advancing child health research in the UK: the Royal College of Paediatrics and Child Health Infants' Children's and young People's research charter Arch Dis Child 102 299-300

Ling R(2015)What difference does patient and public involvement make and what are its pathways to impact? Qualitative study of patients and researchers from a cohort of randomised clinical trials PLoS One 10 e0128817-57

Preston J(2015)‘Talking the talk or walking the walk?’ A bibliometric review of the literature on public involvement in health research published between 1995 and 2009 Health Expect 18 44-1652

Nightingale R(2012)Adolescence and the social determinants of health Lancet 379 1641-1089

Denegri S(2015)A little more conversation please? Qualitative study of researchers’ and patients’ interview accounts of training for patient and public involvement in clinical trials Trials 16 190-S167

Hunter L(2016)Research with children and young people: not on them Arch Dis Child 101 1086-1234

Sparrow E(2017)Barbara Ansell National Network for adolescent rheumatology. What do young people with rheumatic disease believe to be important to research about their condition? A UK-wide study 15 53-566

Modi N(2016)Study protocol: determining what young people with rheumatic disease consider important to research (the young People’s opinions underpinning rheumatology research-YOURR project) Research Involvement and Engagement 2 1-1294

Greenough A(2001)Paediatric rheumatology international trials organisation. The British version of the childhood health assessment questionnaire (CHAQ) and the child health questionnaire (CHQ) Clin Exp Rheum 19 S163-375

Bate J(2016)Public and patient involvement in paediatric research Arch Dis Child Educ Pract Ed 101 158-161

Ranasinghe N(2017)Advancing child health research in the UK: the Royal College of Paediatrics and Child Health Infants' Children's and young People's research charter Arch Dis Child 102 299-300

Ling R(2015)What difference does patient and public involvement make and what are its pathways to impact? Qualitative study of patients and researchers from a cohort of randomised clinical trials PLoS One 10 e0128817-57

Preston J(2015)‘Talking the talk or walking the walk?’ A bibliometric review of the literature on public involvement in health research published between 1995 and 2009 Health Expect 18 44-1652

Nightingale R(2012)Adolescence and the social determinants of health Lancet 379 1641-1089

Denegri S(2015)A little more conversation please? Qualitative study of researchers’ and patients’ interview accounts of training for patient and public involvement in clinical trials Trials 16 190-S167

Hunter L(2016)Research with children and young people: not on them Arch Dis Child 101 1086-1234

Sparrow E(2017)Barbara Ansell National Network for adolescent rheumatology. What do young people with rheumatic disease believe to be important to research about their condition? A UK-wide study 15 53-566

Modi N(2016)Study protocol: determining what young people with rheumatic disease consider important to research (the young People’s opinions underpinning rheumatology research-YOURR project) Research Involvement and Engagement 2 1-1294

Greenough A(2001)Paediatric rheumatology international trials organisation. The British version of the childhood health assessment questionnaire (CHAQ) and the child health questionnaire (CHQ) Clin Exp Rheum 19 S163-375