Approaches to informed consent for hypothesis-testing and hypothesis-generating clinical genomics research

被引：0
|
作者：
Flavia M Facio
Julie C Sapp
Amy Linn
Leslie G Biesecker
机构：
[1] National Human Genome Research Institute,
[2] National Institutes of Health,undefined
[3] Kennedy Krieger Institute,undefined
来源：
BMC Medical Genomics | / 5卷
关键词：
Whole genome sequencing; Whole exome sequencing; Informed consent;
D O I：
暂无
中图分类号：
学科分类号：
摘要：
引用
收藏
相关论文
共 50 条
  • [21] The decision dynamics of clinical research - The context and process of informed consent
    Kuczewski, MG
    Marshall, P
    MEDICAL CARE, 2002, 40 (09) : 45 - 54
  • [22] Impediments to obtaining informed consent for clinical research in trauma patients
    Dutton, Richard P.
    Stansbury, Lynn G.
    Hemlock, Bethany
    Hess, John R.
    Scalea, Thomas M.
    JOURNAL OF TRAUMA-INJURY INFECTION AND CRITICAL CARE, 2008, 64 (04): : 1106 - 1112
  • [23] Stakeholder perspectives regarding alternate approaches to informed consent for comparative effectiveness research
    Morain, Stephanie R.
    Tambor, Ellen
    Moloney, Rachael
    Kass, Nancy E.
    Tunis, Sean
    Hallez, Kristina
    Faden, Ruth R.
    LEARNING HEALTH SYSTEMS, 2018, 2 (02):
  • [24] Normative framework of informed consent in clinical research in Germany, Poland, and Russia
    Orzechowski, Marcin
    Woniak, Katarzyna
    Timmermann, Cristian
    Steger, Florian
    BMC MEDICAL ETHICS, 2021, 22 (01)
  • [25] Normative framework of informed consent in clinical research in Germany, Poland, and Russia
    Marcin Orzechowski
    Katarzyna Woniak
    Cristian Timmermann
    Florian Steger
    BMC Medical Ethics, 22
  • [26] Challenges regarding informed consent in recruitment to clinical research: a qualitative study of clinical research nurses' experiences
    Godskesen, Tove
    Bjork, Joar
    Juth, Niklas
    TRIALS, 2023, 24 (01)
  • [27] Challenges regarding informed consent in recruitment to clinical research: a qualitative study of clinical research nurses’ experiences
    Tove Godskesen
    Joar Björk
    Niklas Juth
    Trials, 24
  • [28] Past, Present, and Future of Informed Consent in Pain and Genomics Research: Challenges Facing Global Medical Community
    Compagnone, Christian
    Schatman, Michael E.
    Rauck, Richard L.
    Van Zundert, Jan
    Kraus, Monika
    Primorac, Dragan
    Williams, Frances
    Allegri, Massimo
    Jordi, Gloria Saccani
    Fanelli, Guido
    PAIN PRACTICE, 2017, 17 (01) : 8 - 15
  • [29] Informed Consent for Clinical Research Involving Patients With Chest Disease in the United States
    Luce, John M.
    CHEST, 2009, 135 (04) : 1061 - 1068
  • [30] Audit of the Informed Consent Process as a Part of a Clinical Research Quality Assurance Program
    Lad, Pramod M.
    Dahl, Rebecca
    SCIENCE AND ENGINEERING ETHICS, 2014, 20 (02) : 469 - 479
12345