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- [41] Analysis of existing "how to" manuals for the care of inpatients with epidermolysis bullosaPEDIATRIC DERMATOLOGY, 2022, 39 (05) : 740 - 742论文数: 引用数: h-index:机构:论文数: 引用数: h-index:机构:论文数: 引用数: h-index:机构:论文数: 引用数: h-index:机构:
- [42] Inherited epidermolysis bullosa An update and suggested dental care considerationsJOURNAL OF THE AMERICAN DENTAL ASSOCIATION, 2011, 142 (09) : 1017 - 1025Feijoo, Javier F.论文数: 0 引用数: 0 h-index: 0机构: Univ Santiago de Compostela, Special Needs Unit, Sch Med & Dent, Santiago De Compostela 15872, Spain Univ Santiago de Compostela, Special Needs Unit, Sch Med & Dent, Santiago De Compostela 15872, SpainBugallo, Juan论文数: 0 引用数: 0 h-index: 0机构: Univ Santiago de Compostela, Special Needs Unit, Sch Med & Dent, Santiago De Compostela 15872, Spain Univ Santiago de Compostela, Special Needs Unit, Sch Med & Dent, Santiago De Compostela 15872, SpainLimeres, Jacobo论文数: 0 引用数: 0 h-index: 0机构: Univ Santiago de Compostela, Special Needs Unit, Sch Med & Dent, Santiago De Compostela 15872, Spain Univ Santiago de Compostela, Special Needs Unit, Sch Med & Dent, Santiago De Compostela 15872, SpainPenarrocha, David论文数: 0 引用数: 0 h-index: 0机构: Univ Valencia, Oral Surg Unit, Sch Med & Dent, Valencia, Spain Univ Santiago de Compostela, Special Needs Unit, Sch Med & Dent, Santiago De Compostela 15872, SpainPenarrocha, Miguel论文数: 0 引用数: 0 h-index: 0机构: Univ Valencia, Oral Surg Unit, Sch Med & Dent, Valencia, Spain Univ Santiago de Compostela, Special Needs Unit, Sch Med & Dent, Santiago De Compostela 15872, SpainDiz, Pedro论文数: 0 引用数: 0 h-index: 0机构: Univ Santiago de Compostela, Special Needs Unit, Sch Med & Dent, Santiago De Compostela 15872, Spain Univ Santiago de Compostela, Special Needs Unit, Sch Med & Dent, Santiago De Compostela 15872, Spain
- [43] The Epidermolysis bullosa Center Freiburg – patient care, diagnostics and researchOrphanet Journal of Rare Diseases, 9 (Suppl 1)Leena Bruckner-Tuderman论文数: 0 引用数: 0 h-index: 0机构: Medical Center - University of Freiburg,Department of DermatologyDaniela Kirstein论文数: 0 引用数: 0 h-index: 0机构: Medical Center - University of Freiburg,Department of Dermatology
- [44] Foot care in epidermolysis bullosa: evidence-based guidelineBRITISH JOURNAL OF DERMATOLOGY, 2020, 182 (03) : 593 - 604Khan, M. T.论文数: 0 引用数: 0 h-index: 0机构: Great Ormond St Hosp Sick Children, EB Dept, London, England UCLH, Royal London Hosp Integrated Med, London, England St George Hosp, Sydney, NSW, Australia Barts & London NHS Fdn Trust, London, England Great Ormond St Hosp Sick Children, EB Dept, London, EnglandO'Sullivan, M.论文数: 0 引用数: 0 h-index: 0机构: Univ Hosp Birmingham NHS Trust, Solihull Hosp, Solihull, W Midlands, England Birmingham Womens & Childrens NHS Fdn Trust, Podiatry Birmingham, Birmingham, W Midlands, England Great Ormond St Hosp Sick Children, EB Dept, London, EnglandFaitli, B.论文数: 0 引用数: 0 h-index: 0机构: Great Ormond St Hosp Sick Children, EB Dept, London, England Great Ormond St Hosp Sick Children, EB Dept, London, EnglandMellerio, J. E.论文数: 0 引用数: 0 h-index: 0机构: Great Ormond St Hosp Sick Children, EB Dept, London, England St Thomas Hosp, Westminster Bridge Rd, London SE1 7EH, England Rare Dis Ctr, St Johns Inst Dermatol, London, England Great Ormond St Hosp Sick Children, EB Dept, London, EnglandFawkes, R.论文数: 0 引用数: 0 h-index: 0机构: Rare Dis Ctr, St Johns Inst Dermatol, London, England Great Ormond St Hosp Sick Children, EB Dept, London, EnglandWood, M.论文数: 0 引用数: 0 h-index: 0机构: Great Ormond St Hosp Sick Children, EB Dept, London, England Great Ormond St Hosp Sick Children, EB Dept, London, EnglandHubbard, L. D.论文数: 0 引用数: 0 h-index: 0机构: St Thomas Hosp, Westminster Bridge Rd, London SE1 7EH, England Great Ormond St Hosp Sick Children, EB Dept, London, EnglandHarris, A. G.论文数: 0 引用数: 0 h-index: 0机构: St George Hosp, Sydney, NSW, Australia Concord Hosp, Dept Dermatol, Sydney, NSW, Australia Great Ormond St Hosp Sick Children, EB Dept, London, EnglandIacobaccio, L.论文数: 0 引用数: 0 h-index: 0机构: Royal Melbourne Hosp, Melbourne, Vic, Australia Great Ormond St Hosp Sick Children, EB Dept, London, EnglandVlahovic, T.论文数: 0 引用数: 0 h-index: 0机构: Temple Univ, Philadelphia, PA 19122 USA Great Ormond St Hosp Sick Children, EB Dept, London, EnglandJames, L.论文数: 0 引用数: 0 h-index: 0机构: Univ Hosp Birmingham NHS Trust, Solihull Hosp, Solihull, W Midlands, England Birmingham Womens & Childrens NHS Fdn Trust, Podiatry Birmingham, Birmingham, W Midlands, England Great Ormond St Hosp Sick Children, EB Dept, London, EnglandBrains, L.论文数: 0 引用数: 0 h-index: 0机构: DEBRA Australia, Pittsworth, Qld, Australia Great Ormond St Hosp Sick Children, EB Dept, London, EnglandFitzpatrick, M.论文数: 0 引用数: 0 h-index: 0机构: DEBRA Australia, Pittsworth, Qld, Australia DEBRA Int, Vienna, Austria Great Ormond St Hosp Sick Children, EB Dept, London, EnglandMayre-Chilton, K.论文数: 0 引用数: 0 h-index: 0机构: St Thomas Hosp, Westminster Bridge Rd, London SE1 7EH, England DEBRA Int, Vienna, Austria Great Ormond St Hosp Sick Children, EB Dept, London, England
- [45] Pain in recessive dystrophic epidermolysis bullosa (RDEB): findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES)ORPHANET JOURNAL OF RARE DISEASES, 2024, 19 (01)Jeffs, Eunice论文数: 0 引用数: 0 h-index: 0机构: Guys & St Thomas NHS Fdn Trust, St Johns Inst Dermatol, London, England Guys & St Thomas NHS Fdn Trust, St Johns Inst Dermatol, London, EnglandPillay, Elizabeth I.论文数: 0 引用数: 0 h-index: 0机构: Guys & St Thomas NHS Fdn Trust, St Johns Inst Dermatol, London, England Guys & St Thomas NHS Fdn Trust, St Johns Inst Dermatol, London, EnglandLedwaba-Chapman, Lesedi论文数: 0 引用数: 0 h-index: 0机构: Kings Coll London, Dept Populat Hlth Sci, London, England Guys & St Thomas NHS Fdn Trust, St Johns Inst Dermatol, London, EnglandBisquera, Alessandra论文数: 0 引用数: 0 h-index: 0机构: Kings Coll London, Dept Populat Hlth Sci, London, England Guys & St Thomas NHS Fdn Trust, St Johns Inst Dermatol, London, EnglandRobertson, Susan J.论文数: 0 引用数: 0 h-index: 0机构: Royal Melbourne Hosp, Royal Childrens Hosp, Dept Dermatol, Melbourne, Australia Murdoch Childrens Res Inst, Melbourne, Australia Guys & St Thomas NHS Fdn Trust, St Johns Inst Dermatol, London, EnglandMcGrath, John A.论文数: 0 引用数: 0 h-index: 0机构: Kings Coll London, Genet Skin Dis Grp, London, England Guys & St Thomas NHS Fdn Trust, St Johns Inst Dermatol, London, EnglandWang, Yanzhong论文数: 0 引用数: 0 h-index: 0机构: Kings Coll London, Dept Populat Hlth Sci, London, England Guys & St Thomas NHS Fdn Trust, St Johns Inst Dermatol, London, EnglandMartinez, Anna E.论文数: 0 引用数: 0 h-index: 0机构: Great Ormond St Hosp Children NHS Fdn Trust, Dept Dermatol, London, England Guys & St Thomas NHS Fdn Trust, St Johns Inst Dermatol, London, EnglandMellerio, Jemima E.论文数: 0 引用数: 0 h-index: 0机构: Guys & St Thomas NHS Fdn Trust, St Johns Inst Dermatol, London, England Kings Coll London, Genet Skin Dis Grp, London, England Guys & St Thomas NHS Fdn Trust, St Johns Inst Dermatol, London, England
- [46] Consensus-based guidelines for the provision of palliative and end-of-life care for people living with epidermolysis bullosaORPHANET JOURNAL OF RARE DISEASES, 2023, 18 (01)Popenhagen, Mark P.论文数: 0 引用数: 0 h-index: 0机构: Univ Colorado, Sch Med, Childrens Hosp Colorado, Dept Anesthesiol B090, Anschutz Med Campus,13123 E 16Th Ave, Aurora, CO 80045 USA Childrens Hosp Colorado, Sect Pediat Anesthesiol, Aurora, CO USA Univ Colorado, Sch Med, Childrens Hosp Colorado, Dept Anesthesiol B090, Anschutz Med Campus,13123 E 16Th Ave, Aurora, CO 80045 USAGenovese, Paola论文数: 0 引用数: 0 h-index: 0机构: Phoenix Childrens Hosp, Phoenix, AZ USA Univ Colorado, Sch Med, Childrens Hosp Colorado, Dept Anesthesiol B090, Anschutz Med Campus,13123 E 16Th Ave, Aurora, CO 80045 USABlishen, Mo论文数: 0 引用数: 0 h-index: 0机构: DEBRA New Zealand, Newtown, New Zealand Univ Colorado, Sch Med, Childrens Hosp Colorado, Dept Anesthesiol B090, Anschutz Med Campus,13123 E 16Th Ave, Aurora, CO 80045 USARajapakse, Dilini论文数: 0 引用数: 0 h-index: 0机构: Great Ormond St Hosp Trust, London, England Univ Colorado, Sch Med, Childrens Hosp Colorado, Dept Anesthesiol B090, Anschutz Med Campus,13123 E 16Th Ave, Aurora, CO 80045 USADiem, Anja论文数: 0 引用数: 0 h-index: 0机构: Paracelsus Med Univ, Univ Hosp, Dept Dermatol & Allergol, EB House Austria, Salzburg, Austria Univ Colorado, Sch Med, Childrens Hosp Colorado, Dept Anesthesiol B090, Anschutz Med Campus,13123 E 16Th Ave, Aurora, CO 80045 USAKing, Alex论文数: 0 引用数: 0 h-index: 0机构: Human Sense LLC, Phoenix, AZ USA Univ Colorado, Sch Med, Childrens Hosp Colorado, Dept Anesthesiol B090, Anschutz Med Campus,13123 E 16Th Ave, Aurora, CO 80045 USAChan, Jennifer论文数: 0 引用数: 0 h-index: 0机构: Lucile Packard Childrens Hosp, Menlo Pk, CA USA Univ Colorado, Sch Med, Childrens Hosp Colorado, Dept Anesthesiol B090, Anschutz Med Campus,13123 E 16Th Ave, Aurora, CO 80045 USAPellicer Arasa, Eduard论文数: 0 引用数: 0 h-index: 0机构: Sant Joan Deu Barcelona Hosp, Barcelona, Spain Univ Colorado, Sch Med, Childrens Hosp Colorado, Dept Anesthesiol B090, Anschutz Med Campus,13123 E 16Th Ave, Aurora, CO 80045 USABaird, Simone论文数: 0 引用数: 0 h-index: 0机构: DEBRA Australia, Pittsworth, Qld, Australia Univ Colorado, Sch Med, Childrens Hosp Colorado, Dept Anesthesiol B090, Anschutz Med Campus,13123 E 16Th Ave, Aurora, CO 80045 USAFerreira da Rocha, Anna Carolina论文数: 0 引用数: 0 h-index: 0机构: DEBRA Brazil, Blumenau, Santa Catarina, Brazil Univ Colorado, Sch Med, Childrens Hosp Colorado, Dept Anesthesiol B090, Anschutz Med Campus,13123 E 16Th Ave, Aurora, CO 80045 USAStitt, Gideon论文数: 0 引用数: 0 h-index: 0机构: Univ Utah, Div Clin Pharmacol, Salt Lake City, UT USA Univ Colorado, Sch Med, Childrens Hosp Colorado, Dept Anesthesiol B090, Anschutz Med Campus,13123 E 16Th Ave, Aurora, CO 80045 USABadger, Kellie论文数: 0 引用数: 0 h-index: 0机构: Univ Colorado, Sch Med, Childrens Hosp Colorado, Dept Anesthesiol B090, Anschutz Med Campus,13123 E 16Th Ave, Aurora, CO 80045 USAZmazek, Vlasta论文数: 0 引用数: 0 h-index: 0机构: DEBRA Croatia, Zagreb, Croatia Univ Colorado, Sch Med, Childrens Hosp Colorado, Dept Anesthesiol B090, Anschutz Med Campus,13123 E 16Th Ave, Aurora, CO 80045 USAAmbreen, Faiza论文数: 0 引用数: 0 h-index: 0机构: DEBRA Pakistan, Lahore, Punjab, Pakistan Univ Colorado, Sch Med, Childrens Hosp Colorado, Dept Anesthesiol B090, Anschutz Med Campus,13123 E 16Th Ave, Aurora, CO 80045 USAMackenzie, Caroline论文数: 0 引用数: 0 h-index: 0机构: Guys & St Thomas Fdn NHS Fdn Trust, EB Adult Serv, East Hampshire, England Univ Colorado, Sch Med, Childrens Hosp Colorado, Dept Anesthesiol B090, Anschutz Med Campus,13123 E 16Th Ave, Aurora, CO 80045 USAPrice, Harper论文数: 0 引用数: 0 h-index: 0机构: Univ Colorado, Sch Med, Childrens Hosp Colorado, Dept Anesthesiol B090, Anschutz Med Campus,13123 E 16Th Ave, Aurora, CO 80045 USARoberts, Toni论文数: 0 引用数: 0 h-index: 0机构: DEBRA South Africa, Western Cape, Cape Town, South Africa Univ Colorado, Sch Med, Childrens Hosp Colorado, Dept Anesthesiol B090, Anschutz Med Campus,13123 E 16Th Ave, Aurora, CO 80045 USAMoore, Zena论文数: 0 引用数: 0 h-index: 0机构: Royal Coll Surgeons Ireland, Univ Med & Hlth Sci, Dublin, Ireland Univ Colorado, Sch Med, Childrens Hosp Colorado, Dept Anesthesiol B090, Anschutz Med Campus,13123 E 16Th Ave, Aurora, CO 80045 USAPatton, Declan论文数: 0 引用数: 0 h-index: 0机构: Royal Coll Surgeons Ireland, Univ Med & Hlth Sci, Dublin, Ireland Univ Colorado, Sch Med, Childrens Hosp Colorado, Dept Anesthesiol B090, Anschutz Med Campus,13123 E 16Th Ave, Aurora, CO 80045 USAMurphy, Paul论文数: 0 引用数: 0 h-index: 0机构: Univ Colorado, Sch Med, Childrens Hosp Colorado, Dept Anesthesiol B090, Anschutz Med Campus,13123 E 16Th Ave, Aurora, CO 80045 USAMayre-Chilton, Kattya论文数: 0 引用数: 0 h-index: 0机构: DEBRA Int, Vienna, Austria Mildmay Miss Hosp, London, England Univ Colorado, Sch Med, Childrens Hosp Colorado, Dept Anesthesiol B090, Anschutz Med Campus,13123 E 16Th Ave, Aurora, CO 80045 USA
- [47] Multicentre consensus recommendations for skin care in inherited epidermolysis bullosaOrphanet Journal of Rare Diseases, 9May El Hachem论文数: 0 引用数: 0 h-index: 0机构: Bambino Gesù Children's Hospital,Dermatology UnitGiovanna Zambruno论文数: 0 引用数: 0 h-index: 0机构: Bambino Gesù Children's Hospital,Dermatology UnitEva Bourdon-Lanoy论文数: 0 引用数: 0 h-index: 0机构: Bambino Gesù Children's Hospital,Dermatology UnitAnnalisa Ciasulli论文数: 0 引用数: 0 h-index: 0机构: Bambino Gesù Children's Hospital,Dermatology UnitChristiane Buisson论文数: 0 引用数: 0 h-index: 0机构: Bambino Gesù Children's Hospital,Dermatology UnitSmail Hadj-Rabia论文数: 0 引用数: 0 h-index: 0机构: Bambino Gesù Children's Hospital,Dermatology UnitAndrea Diociaiuti论文数: 0 引用数: 0 h-index: 0机构: Bambino Gesù Children's Hospital,Dermatology UnitCarolina F Gouveia论文数: 0 引用数: 0 h-index: 0机构: Bambino Gesù Children's Hospital,Dermatology UnitAngela Hernández-Martín论文数: 0 引用数: 0 h-index: 0机构: Bambino Gesù Children's Hospital,Dermatology UnitRaul de Lucas Laguna论文数: 0 引用数: 0 h-index: 0机构: Bambino Gesù Children's Hospital,Dermatology UnitMateja Dolenc-Voljč论文数: 0 引用数: 0 h-index: 0机构: Bambino Gesù Children's Hospital,Dermatology UnitGianluca Tadini论文数: 0 引用数: 0 h-index: 0机构: Bambino Gesù Children's Hospital,Dermatology UnitGuglielmo Salvatori论文数: 0 引用数: 0 h-index: 0机构: Bambino Gesù Children's Hospital,Dermatology UnitCristiana De Ranieri论文数: 0 引用数: 0 h-index: 0机构: Bambino Gesù Children's Hospital,Dermatology UnitStephanie Leclerc-Mercier论文数: 0 引用数: 0 h-index: 0机构: Bambino Gesù Children's Hospital,Dermatology UnitChristine Bodemer论文数: 0 引用数: 0 h-index: 0机构: Bambino Gesù Children's Hospital,Dermatology Unit
- [48] Anesthesia and pain management for pediatric patients with dystrophic epidermolysis bullosaJOURNAL OF CLINICAL ANESTHESIA, 2006, 18 (04) : 268 - 271Lin, Yuan-Chi论文数: 0 引用数: 0 h-index: 0机构: Harvard Univ, Sch Med, Childrens Hosp Boston, Dept Anesthesia, Boston, MA 02115 USA Harvard Univ, Sch Med, Childrens Hosp Boston, Dept Anesthesia, Boston, MA 02115 USA论文数: 引用数: h-index:机构:
- [49] Consensus-based guidelines for the provision of palliative and end-of-life care for people living with epidermolysis bullosaOrphanet Journal of Rare Diseases, 18Mark P. Popenhagen论文数: 0 引用数: 0 h-index: 0机构: University of Colorado School of Medicine,Department of Anesthesiology B090, Children’s Hospital ColoradoPaola Genovese论文数: 0 引用数: 0 h-index: 0机构: University of Colorado School of Medicine,Department of Anesthesiology B090, Children’s Hospital ColoradoMo Blishen论文数: 0 引用数: 0 h-index: 0机构: University of Colorado School of Medicine,Department of Anesthesiology B090, Children’s Hospital ColoradoDilini Rajapakse论文数: 0 引用数: 0 h-index: 0机构: University of Colorado School of Medicine,Department of Anesthesiology B090, Children’s Hospital ColoradoAnja Diem论文数: 0 引用数: 0 h-index: 0机构: University of Colorado School of Medicine,Department of Anesthesiology B090, Children’s Hospital ColoradoAlex King论文数: 0 引用数: 0 h-index: 0机构: University of Colorado School of Medicine,Department of Anesthesiology B090, Children’s Hospital ColoradoJennifer Chan论文数: 0 引用数: 0 h-index: 0机构: University of Colorado School of Medicine,Department of Anesthesiology B090, Children’s Hospital ColoradoEduard Pellicer Arasa论文数: 0 引用数: 0 h-index: 0机构: University of Colorado School of Medicine,Department of Anesthesiology B090, Children’s Hospital ColoradoSimone Baird论文数: 0 引用数: 0 h-index: 0机构: University of Colorado School of Medicine,Department of Anesthesiology B090, Children’s Hospital ColoradoAnna Carolina Ferreira da Rocha论文数: 0 引用数: 0 h-index: 0机构: University of Colorado School of Medicine,Department of Anesthesiology B090, Children’s Hospital ColoradoGideon Stitt论文数: 0 引用数: 0 h-index: 0机构: University of Colorado School of Medicine,Department of Anesthesiology B090, Children’s Hospital ColoradoKellie Badger论文数: 0 引用数: 0 h-index: 0机构: University of Colorado School of Medicine,Department of Anesthesiology B090, Children’s Hospital ColoradoVlasta Zmazek论文数: 0 引用数: 0 h-index: 0机构: University of Colorado School of Medicine,Department of Anesthesiology B090, Children’s Hospital ColoradoFaiza Ambreen论文数: 0 引用数: 0 h-index: 0机构: University of Colorado School of Medicine,Department of Anesthesiology B090, Children’s Hospital ColoradoCaroline Mackenzie论文数: 0 引用数: 0 h-index: 0机构: University of Colorado School of Medicine,Department of Anesthesiology B090, Children’s Hospital ColoradoHarper Price论文数: 0 引用数: 0 h-index: 0机构: University of Colorado School of Medicine,Department of Anesthesiology B090, Children’s Hospital ColoradoToni Roberts论文数: 0 引用数: 0 h-index: 0机构: University of Colorado School of Medicine,Department of Anesthesiology B090, Children’s Hospital ColoradoZena Moore论文数: 0 引用数: 0 h-index: 0机构: University of Colorado School of Medicine,Department of Anesthesiology B090, Children’s Hospital ColoradoDeclan Patton论文数: 0 引用数: 0 h-index: 0机构: University of Colorado School of Medicine,Department of Anesthesiology B090, Children’s Hospital ColoradoPaul Murphy论文数: 0 引用数: 0 h-index: 0机构: University of Colorado School of Medicine,Department of Anesthesiology B090, Children’s Hospital ColoradoKattya Mayre-Chilton论文数: 0 引用数: 0 h-index: 0机构: University of Colorado School of Medicine,Department of Anesthesiology B090, Children’s Hospital Colorado
- [50] Oral manifestations and dental care of epidermolysis bullosa patient: a case reportMEDICAL SCIENCE, 2020, 24 (104) : 2519 - 2525论文数: 引用数: h-index:机构: