A Qualitative Examination of the Impact of the COVID-19 Pandemic on Individuals with Neuro-developmental Disabilities and their Families

被引：0

作者：

David B. Nicholas

Wendy Mitchell

Jill Ciesielski

Arisha Khan

Lucyna Lach

机构：

[1] University of Calgary,Faculty of Social Work, Central and Northern Alberta Region

[2] McGill University,Centre for Research on Children and Families

[3] McGill University,School of Social Work, Faculty of Arts

来源：

Journal of Child and Family Studies | 2022年 / 31卷

关键词：

Neuro-developmental disabilities; Families; COVID-19 pandemic; Social determinants of health; Service disruption; Qualitative;

D O I：

暂无

中图分类号：

学科分类号：

摘要：

Individuals with neuro-developmental disabilities (NDD) have been profoundly affected by the COVID-19 pandemic. Based on focus groups with 24 service providers supporting this population, using an Interpretive Description approach, we examined perceived impacts of the pandemic on individuals with NDD and their families. The results highlight pandemic-related experiences which include: service reduction, the need for financial supports, relying on natural supports, and school-related challenges. Interruptions in services have resulted in intensified mental health issues for individuals with NDD and family caregivers, with particular concern for those with added social determinants of health-related barriers. Mitigating factors have also emerged, such as resilience and technology utilization to facilitate communication. Recommendations for resource flexibility and sufficiency as well as navigational support are offered.

引用

页码：2202 / 2214

页数：12

共 55 条

[1]

Cassidy SA(2020)An expert discussion on autism in the COVID-19 pandemic Autism in Adulthood 2 106-117

[2]

Nicolaidis C(2020)Rethinking ‘essential’ and ‘nonessential’: The developmental paediatrician’s COVID-19 response Paediatrics & Child Health 25 265-267

[3]

Davies B(2019)Critical disability studies, Brexit and Trump: A time of neoliberal-ableism Rethinking History 23 233-251

[4]

Rosa SDR(2021)Gender differences in employment one year into the COVID-19 pandemic: An analysis by industrial sector and firm size Economic and Social Reports 1 1-13

[5]

Eisenman D(2020)The impact of the COVID-19 pandemic on marginalized populations in the United States: A research agenda Journal of Vocational Behavior 119 1-4

[6]

Onaiwu MG(2020)The role of compassion and ethics in decision making regarding access to applied behavior analysis services during the COVID-19 Crisis: A response to Cox, Plavnick, and Brodhead Behavior Analysis in Practice 13 604-608

[7]

Kapp SK(2020)Advocating for children during the COVID-19 school closures Pediatrics 146 1-5

[8]

Kripke CC(2003)The immediate psychological and occupational impact of the 2003 SARS outbreak in a teaching hospital CMAJ: Canadian Medical Association Journal=Journal de l’Association Medicale Canadienne 168 1245-1251

[9]

Rodgers J(2013)Neurodevelopmental disorders: Mechanisms and boundary definitions from genomes, interactomes, and proteomes Translational Psychiatry 3 1-6

[10]

Waisman T(2020)The ethic of care, disability, and rehabilitation during the Coronavirus disease 2019 pandemic Pediatric Neurology 111 39-661

← 1 2 3 4 5 6 →