The use of digital storytelling of patients’ stories as an approach to translating knowledge: a scoping review

被引:34
作者
Park E. [1 ]
Forhan M. [1 ,2 ]
Jones C.A. [1 ,3 ]
机构
[1] Faculty of Rehabilitation Medicine, University of Alberta, Edmonton, T6G 2G4, AB
[2] Department Occupational Therapy, Faculty of Rehabilitation Medicine, University of Alberta, Edmonton, T6G 2G4, AB
[3] Department Physical Therapy, Faculty of Rehabilitation Medicine, University of Alberta, Edmonton, T6G 2G4, AB
关键词
Digital storytelling; Health research; Knowledge translation tools; Narrative medicine; Shared decision-making;
D O I
10.1186/s40900-021-00305-x
中图分类号
学科分类号
摘要
Background: A growing interest has centered on digital storytelling in health research, described as a multi-media presentation of a story using technology. The use of digital storytelling in knowledge translation (KT) is emerging as technology advances in healthcare to address the challenging tasks of disseminating and transferring knowledge to key stakeholders. We conducted a scoping review of the literature available on the use of patient digital storytelling as a tool in KT interventions. Methods: We followed by Arksey and O’Malley (Int J Soc Res Methodol 8(1):19–32, 2005), and Levac et al. (Implement Sci 5(1):69, 2010) recommended steps for scoping reviews. Search strategies were conducted for electronic databases (Medline, CINAHL, Web of Science, ProQuest dissertations and theses global, Clinicaltrials.gov and Psychinfo). The Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for scoping reviews (PRISMA-ScR) was used to report the review process. Results: Of 4656 citations retrieved, 114 full texts were reviewed, and twenty-one articles included in the review. Included studies were from nine countries and focused on an array of physical and mental health conditions. A broad range of interpretations of digital storytelling and a variety of KT interventions were identified. Digital storytelling was predominately defined as a story in multi-media form, presented as a video, for selective or public viewing and used as educational material for healthcare professionals, patients and families. Conclusion: Using digital storytelling as a tool in KT interventions can contribute to shared decision-making in healthcare and increase awareness in patients’ health related experiences. Concerns centered on the accuracy and reliability of some of the information available online and the impact of digital storytelling on knowledge action and implementation. © 2021, The Author(s).
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[31]  
Stellefson M., Paige S.R., Alber J.M., Stewart M., COPD360social online community: a social media review, Health Promot Pract, 19, 4, pp. 489-491, (2018)
[32]  
Njeru J.W., Patten C.A., Hanza M.M., Brockman T.A., Ridgeway J.L., Weis J.A., Clark M.M., Goodson M., Osman A., Porraz-Capetillo G., Et al., Stories for change: development of a diabetes digital storytelling intervention for refugees and immigrants to Minnesota using qualitative methods, BMC Public Health, 15, 1, (2015)
[33]  
Cueva M., Kuhnley R., Lanier A., Dignan M., Revels L., Schoenberg N.E., Cueva K., Promoting culturally respectful cancer education through digital storytelling, Int J Indig Health, 11, 1, pp. 34-49, (2016)
[34]  
Frohlich D.O., Inflammatory bowel disease patient leaders' responsibility for disseminating health information online, Gastroenterol Nurs, 42, 1, pp. 29-40, (2019)
[35]  
Halter A.K., The Power of Storytelling: Digital Stories as a Health Promotion Tool in the Yakima Valley, (2015)
[36]  
Benson S., Exploring digital storytelling applications in the community, (2012)
[37]  
Shapiro D., Tomasa L., Koff N.A., Patients as teachers, medical students as filmmakers: the video slam, a pilot study, Acad Med, 84, 9, pp. 1235-1243, (2009)
[38]  
Kelly-Hedrick M., Grunberg P.H., Brochu F., Zelkowitz P., It's totally okay to be sad, but never lose hope": content analysis of infertility-related videos on Youtube in relation to viewer preferences, J Med Internet Res, 20, 5, (2018)
[39]  
Laing C.M., Moules N.J., Estefan A., Lang M., Stories take your role away from you": understanding the impact on health care professionals of viewing digital stories of pediatric and adolescent/young adult oncology patients, J Pediatr Oncol Nurs, 34, 4, pp. 261-271, (2017)
[40]  
Reid K., Hartling L., Ali S., Le A., Norris A., Scott S.D., Development and usability evaluation of an art and narrative-based knowledge translation tool for parents with a child with pediatric chronic pain: multi-method study, J Med Internet Res, 19, 12, (2017)