Evaluating palliative care: Facilitating reflexive dialgoues about an ambiguous concept

被引：10

作者：

Tineke A. Abma

机构：

[1] Erasmus University,Institute for Health Care Policy and Management

来源：

Medicine, Health Care and Philosophy | 2001年 / 4卷 / 3期

关键词：

responsive evaluation; palliative care; dialogue; narrative; empirical ethics;

D O I：

10.1023/A:1012096917865

中图分类号：

学科分类号：

摘要：

Palliation is a relatively new concept that is used in connection with the integral care provided to those who are unable to recover from their illness. The specific meaning of the concept has not been clearly defined. This article explores the possibilities offered by a responsive approach to evaluation that can facilitate a reflexive dialogue on this ambiguous concept. In doing so it draws on a case study of a palliative care project in a Dutch health care authority. The article begins with an overview of the characteristics of a responsive approach to evaluation and addresses interpretative, representational and practical dilemmas. It goes on to present a series of dialogues between health professionals, informal caregivers, patients and evaluators. These dialogues take the form of juxtaposed stories, transcribed conversations and interpretations. Finally, the learning experiences are summarised and the appropriateness of the responsive approach to evaluate palliative care is discussed.

引用

页码：261 / 276

页数：15

共 11 条

[1]

Abma T.A.(1997)Playing with/in Plurality, Revitalizing Realities and Relationships in Rotterdam Evaluation 5 25-48

[2]

Abma T.A.(1998)Storytelling as Inquiry in a Mental Hospital Qualitative Health Research 8 821-838

[3]

Abma T.A.(1998)Writing for Dialogue Evaluation 4 434-454

[4]

Bloom L.R.(1996)Stories’ of One's Own: Nonunitary Subjectivity in Narrative Representation Qualitative Inquiry 2 176-197

[5]

Greene J.C.(1988)Stakeholder Participation and Utilization Program Evaluation Evaluation Review 12 91-116

[6]

King I.W.(1999)Space and the Non-So-Final Frontiers, Re-Presenting the Potential of Collective Learning for Organizations Management Learning 30 431-448

[7]

Rowe A.(1997)Re-Presenting the Subject: Problems in Personal Narrative Inquiry Qualitative Studies in Education 10 455-470

[8]

Larson C.L.(1992)Fourth Generation Evaluation, the Paradigm Revolution and Health Promotion Revue Canadienne de sante publique 83 6-10

[9]

Lincoln Y.S.(1996)Creating Understanding That Cultivates Change Qualitative Inquiry 2 151-175

[10]

McWilliam C.L.(1999)Ethiek en empirisch onderzoek: een pleidooi voor interpretatie and contextualiteit Kennis en methode 23 145-154

← 1 2 →