Visualization formats of patient-reported outcome measures in clinical practice: a systematic review about preferences and interpretation accuracy

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作者
Elaine A. C. Albers
Itske Fraterman
Iris Walraven
Erica Wilthagen
Sanne B. Schagen
Iris M. van der Ploeg
Michel W. J. M. Wouters
Lonneke V. van de Poll-Franse
Kelly M. de Ligt
机构
[1] The Netherlands Cancer Institute,Department of Psychosocial Research, Division of Psychosocial Research and Epidemiology
[2] Department for Health Evidence,Library and Scientific Information Department
[3] The Netherlands Cancer Institute,Department of Psychology
[4] University of Amsterdam,Department of Surgical Oncology
[5] Antoni Van Leeuwenhoek,Department of Biomedical Data Sciences
[6] Leiden University Medical Center,Department of Research and Development
[7] Netherlands Comprehensive Cancer Organization,Department of Medical and Clinical Psychology, Center of Research On Psychological and Somatic Disorders (CoRPS)
[8] Tilburg University,undefined
来源
Journal of Patient-Reported Outcomes | / 6卷
关键词
Patient reported outcome measures; Data visualization; Shared decision-making; Systematic review;
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摘要
Patient-Reported Outcome Measures (PROMs) capture patients' self-reported health through the use of questionnaires. PROMs measure health related quality of life, daily functioning, and symptom experience, which are becoming increasingly important to incorporate in clinical practice for individual patient management. To present PROMs within clinical practice, raw or summarized PROMs scores can be visualized in graphical formats. To be useful during clinical encounters, both patients and clinicians ought to interpret such formats correctly. New evidence about graphic visualization formats for PROMs scores has become available. Therefore, we systematically reviewed the literature to evaluate evidence for graphic visualization formats of PROMs data in clinical practice. In 25 included papers, most studies used graphical formats like bar charts, line graphs, and pie charts for presenting PROMs scores. There was no predominant graphical visualization format approach in terms of preferences or interpretation accuracy for both patients and clinicians. Patients preferred bar charts and line graphs as these were easy and quick for retrieving information about their PROMs scores over time. Clinicians’ interpretation accuracy and preferences were similar among graphic visualization formats. The graphical interpretation of PROMs data for patients and clinicians can be improved by using colors, descriptions of measurement scale directionality, descriptive labels, and brief definitions.
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