Cross-sectorial collaboration on policy-driven rehabilitation care models for persons with neuromuscular diseases: reflections and behavior of community-based health professionals

[1] Hartley SE(2011)Experiences of attendance at a neuromuscular centre: perceptions of adults with neuromuscular disorders Disabil Rehabil 33 1022-1032

[2] Goodwin PC(2005)Living with motor neurone disease: lives, experiences of services and suggestions for change Health Soc Care Community 13 64-74

[3] Goldbart J(2019)Perceptions of the transition from receiving the diagnosis recessive limb-girdle muscular dystrophy to becoming in need of human support and using a wheelchair: an interview study Disabil Rehabil 41 2289-2298

[4] Hughes RA(2018)Diagnosis and management of Duchenne muscular dystrophy, part 3: primary care, emergency management, psychosocial care, and transitions of care across the lifespan Lancet Neurol 17 445-455

[5] Sinha A(2018)Neuromuscular diseases: diagnosis and management Orthop Traumatol Surg Res 104 S89-s95

[6] Higginson I(2012)Using palliative care in progressive neuromuscular disease to maximize quality of life Phys Med Rehabil Clin N Am 23 903-909

[7] Down K(2018)When a policy decision meets practice realities: the case of cancer survivorship care and rehabilitation needs assessment Eur J Oncol Nurs 33 70-77

[8] Leigh PN(2018)Duchenne and Becker muscular dystrophy in adolescents: current perspectives Adolesc Health Med Ther 9 53-63

[9] Aho AC(2012)Integrated complex care coordination for children with medical complexity: a mixed-methods evaluation of tertiary care-community collaboration BMC Health Serv Res 12 366-958

[10] Hultsjö S(2020)The adult multidisciplinary respiratory neuromuscular clinic Breathe (Sheff) 16 200121-85

[1] Hartley SE(2011)Experiences of attendance at a neuromuscular centre: perceptions of adults with neuromuscular disorders Disabil Rehabil 33 1022-1032

[2] Goodwin PC(2005)Living with motor neurone disease: lives, experiences of services and suggestions for change Health Soc Care Community 13 64-74

[3] Goldbart J(2019)Perceptions of the transition from receiving the diagnosis recessive limb-girdle muscular dystrophy to becoming in need of human support and using a wheelchair: an interview study Disabil Rehabil 41 2289-2298

[4] Hughes RA(2018)Diagnosis and management of Duchenne muscular dystrophy, part 3: primary care, emergency management, psychosocial care, and transitions of care across the lifespan Lancet Neurol 17 445-455

[5] Sinha A(2018)Neuromuscular diseases: diagnosis and management Orthop Traumatol Surg Res 104 S89-s95

[6] Higginson I(2012)Using palliative care in progressive neuromuscular disease to maximize quality of life Phys Med Rehabil Clin N Am 23 903-909

[7] Down K(2018)When a policy decision meets practice realities: the case of cancer survivorship care and rehabilitation needs assessment Eur J Oncol Nurs 33 70-77

[8] Leigh PN(2018)Duchenne and Becker muscular dystrophy in adolescents: current perspectives Adolesc Health Med Ther 9 53-63

[9] Aho AC(2012)Integrated complex care coordination for children with medical complexity: a mixed-methods evaluation of tertiary care-community collaboration BMC Health Serv Res 12 366-958

[10] Hultsjö S(2020)The adult multidisciplinary respiratory neuromuscular clinic Breathe (Sheff) 16 200121-85