User-centered design and the development of patient decision aids: Protocol for a systematic review

被引：122

作者：

Witteman H.O. ^{[1
,2
,3
]}

Dansokho S.C. ^{[1
]}

Colquhoun H. ^{[4
]}

Coulter A. ^{[5
]}

Dugas M. ^{[1
]}

Fagerlin A. ^{[6
,7
]}

Giguere A.M.C. ^{[1
,2
,8
]}

Glouberman S. ^{[9
]}

Haslett L. ^{[10
]}

Hoffman A. ^{[11
]}

Ivers N. ^{[12
,13
]}

Légaré F. ^{[2
,3
]}

Légaré J. ^{[14
]}

Levin C. ^{[15
]}

Lopez K. ^{[16
]}

Montori V.M. ^{[17
]}

Provencher T. ^{[1
]}

Renaud J.-S. ^{[1
,2
]}

Sparling K. ^{[18
]}

Stacey D. ^{[19
,20
]}

Vaisson G. ^{[1
]}

Volk R.J. ^{[21
]}

Witteman W. ^{[3
]}

机构：

[1] Laval University, Office of Education and Continuing Professional Development, Faculty of Medicine, Pavillon Ferdinand-Vandry 2881, Quebec City, G1V 0A6, QC

[2] Laval University, Department of Family and Emergency Medicine, 1050 avenue de la Medecine, Pavillon Ferdinand-Vandry 4617, Quebec City, G1V 0A6, QC

[3] Research Centre of the Centre Hospitalier Universitaire de Québec, 1 rue de l'Espinay, Hopital Saint Francois d'Assise D6-727, Quebec City, G1L 3L5, QC

[4] Rehabilitation Sciences Building, Occupational Science and Occupational Therapy, 160-500 University Ave, Toronto, M5G 1V7, ON

[5] University of Oxford, Health Services Research Unit, Nuffield Department of Population Health, Old Road Campus, Oxford

[6] University of Michigan, Center for Bioethics and Social Sciences in Medicine, Division of General Medicine, Department of Internal Medicine, 2800 Plymouth Road, Building 16, Ann Arbor, 48109-2800, MI

[7] VA Ann Arbor Healthcare System, VA Health Services Research and Development Center of Excellence, Ann Arbor, MI

[8] St-Sacrement Hospital, Quebec Centre for Excellence in Aging, Research Centre of the CHU de Quebec, Local L2-08, 1050 chemin Sainte-Foy, Quebec City, G1S 4L8, QC

[9] Patients Canada, 3560 Bathurst Street, Toronto, M6A 2E1, ON

[10] East End Community Health Centre, 1619 Queen St. E, Toronto, M4L1G4, ON

[11] Geisel School of Medicine at Dartmouth, Department of Community and Family Medicine, The Dartmouth Institute for Health Policy and Clinical Practice, 46 Centerra Parkway (HB3250), Lebanon, NH

[12] Women's College Hospital, Family Practice Health Centre and Institute for Health Systems Solutions and Virtual Care, 77 Grenville Street 4th Floor, Toronto, M5S 1B3, ON

[13] University of Toronto, Department of Family and Community Medicine, 500 University Avenue, 5th Floor, Toronto, M5G 1V7, ON

[14] Arthritis Alliance of Canada, 403 rue des Érables, Neuville, G0A 2R0, QC

[15] Healthwise, Inc, Informed Medical Decisions Foundation, 40 Court Street, Boston, 02108, MA

[16] 6811 Baxter Terrace Cir, Anchorage, 99504, AK

[17] Mayo Clinic, Knowledge and Evaluation Research Unit, Rochester, 55905, MN

[18] Six Until Me, 5600 Post Rd, Unit 228, East Greenwich, 02818, RI

[19] University of Ottawa, School of Nursing, 451 Smyth Road (RGN 1118), Ottawa, K1H 8M5, ON

[20] Ottawa Hospital Research Institute, 725 Parkdale Ave, Ottawa, K1Y 4E9, ON

[21] The University of Texas MD Anderson Cancer Center, Department of Health Services Research, P.O. Box 301402, Houston, 77230-1444, TX

来源：

Systematic Reviews | / 4卷 / 1期

关键词：

Counseling; Decision support; Human-centered design; Implementation; Knowledge translation; Patient decision aids; Patient education; Patient partnership; Patient-centered care; Shared decision-making; Stakeholder engagement; User-centered design;

D O I：

10.1186/2046-4053-4-11

中图分类号：

学科分类号：

摘要：

Background: Providing patient-centered care requires that patients partner in their personal health-care decisions to the full extent desired. Patient decision aids facilitate processes of shared decision-making between patients and their clinicians by presenting relevant scientific information in balanced, understandable ways, helping clarify patients' goals, and guiding decision-making processes. Although international standards stipulate that patients and clinicians should be involved in decision aid development, little is known about how such involvement currently occurs, let alone best practices. This systematic review consisting of three interlinked subreviews seeks to describe current practices of user involvement in the development of patient decision aids, compare these to practices of user-centered design, and identify promising strategies. Methods/design: A research team that includes patient and clinician representatives, decision aid developers, and systematic review method experts will guide this review according to the Cochrane Handbook and PRISMA reporting guidelines. A medical librarian will hand search key references and use a peer-reviewed search strategy to search MEDLINE, EMBASE, PubMed, Web of Science, the Cochrane Library, the ACM library, IEEE Xplore, and Google Scholar. We will identify articles across all languages and years describing the development or evaluation of a patient decision aid, or the application of user-centered design or human-centered design to tools intended for patient use. Two independent reviewers will assess article eligibility and extract data into a matrix using a structured pilot-tested form based on a conceptual framework of user-centered design. We will synthesize evidence to describe how research teams have included users in their development process and compare these practices to user-centered design methods. If data permit, we will develop a measure of the user-centeredness of development processes and identify practices that are likely to be optimal. Discussion: This systematic review will provide evidence of current practices to inform approaches for involving patients and other stakeholders in the development of patient decision aids. We anticipate that the results will help move towards the establishment of best practices for the development of patient-centered tools and, in turn, help improve the experiences of people who face difficult health decisions. Systematic review registration: PROSPERO CRD42014013241. © 2015 Witteman et al.; licensee BioMed Central.

引用

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