Measuring Duchenne muscular dystrophy impact: development of a proxy-reported measure derived from PROMIS item banks

被引：0
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作者：
Carolyn E. Schwartz
Roland B. Stark
David Cella
Katrina Borowiec
Katherine L. Gooch
Ivana F. Audhya
机构：
[1] DeltaQuest Foundation,Departments of Medicine and Orthopaedic Surgery
[2] Inc.,Department of Medical Social Sciences
[3] Tufts University Medical School,Department of Measurement, Evaluation, Statistics, and Assessment
[4] Feinberg School of Medicine at Northwestern University,undefined
[5] Boston College Lynch School of Education and Human Development,undefined
[6] Sarepta Therapeutics,undefined
来源：
Orphanet Journal of Rare Diseases | / 16卷
关键词：
Duchenne muscular dystrophy; Disability; Neuromuscular; Proxy measurement; Validation; Item response theory; Classical test theory;
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