The International Network on Oesophageal Atresia (INoEA) consensus guidelines on the transition of patients with oesophageal atresia–tracheoesophageal fistula

被引：0
作者：
Usha Krishnan
Michael W. Dumont
Hayley Slater
Benjamin D. Gold
David Seguy
Mikael Bouin
Rene Wijnen
Luigi Dall’Oglio
Mario Costantini
Anastassios C. Koumbourlis
Thomas A. Kovesi
Michael J. Rutter
Marlene Soma
Jessica Menzies
Audrey Van Malleghem
Nathalie Rommel
Michaela Dellenmark-Blom
Vuokko Wallace
Evelyn Culnane
Graham Slater
Frederic Gottrand
Christophe Faure
机构：
[1] Sydney Children’s Hospital,Department of Paediatric Gastroenterology
[2] University of New South Wales,School of Women’s and Children’s Health
[3] University Hospitals Coventry and Warwickshire NHS Trust,Children’s Center for Digestive Health Care
[4] University Hospitals Birmingham NHS Foundation Trust,Department of Nutrition
[5] GI Care for Kids,Department of Paediatric Surgery
[6] LLC,Digestive Surgery and Endoscopy Unit
[7] University of Lille,Department of Surgical, Oncological and Gastroenterological Sciences
[8] Reference Centre for Rare Oesophageal Diseases,Division of Pulmonary & Sleep Medicine
[9] CHU Lille,Deptartment of Paediatrics
[10] CHU Lille,Division of Paediatric Otolaryngology
[11] University of Montreal,Department of Otolaryngology
[12] CHUM Research Center (CRCHUM),Department of Otolaryngology
[13] Erasmus Medical Center-Sophia Children’s Hospital,Department of Nutrition and Dietetics
[14] Bambino Gesù Children’s Hospital,Department of Gastroenterology, Department of Neurogastroenterology and Motility
[15] University of Padua,Department of Neurosciences, ExpORL, Deglutology
[16] Children’s National Medical Center,Department of Paediatric Surgery, The Queen Silvia Children’s hospital
[17] George Washington University School of Medicine & Health Sciences,Department of Paediatrics, Institute of Clinical Sciences, Sahlgrenska Academy
[18] Children’s Hospital of Eastern Ontario,Department of Psychology
[19] The University of Ottawa,Department of Psychology
[20] Cincinnati Children’s Hospital Medical Center,Transition Support Service
[21] University of Cincinnati,Division of Paediatric Gastroenterology
[22] Sydney Children’s Hospital,Institute for Translational Research in Inflammation INFINITE, Inserm Faculté de Médecine
[23] Sydney Children’s Hospital,Division of Paediatric Gastroenterology & Oesophagus Development and Engineering Lab
[24] Centre Hospitalier Universitaire De Lille,undefined
[25] University Hospitals Leuven,undefined
[26] University of Leuven,undefined
[27] Sahlgrenska University Hospital,undefined
[28] University of Gothenburg,undefined
[29] University of Bath,undefined
[30] University of Eastern Finland,undefined
[31] The Royal Children’s Hospital,undefined
[32] EAT Oesophageal Atresia Global Support Groups e.V.,undefined
[33] Hepatology and Nutrition,undefined
[34] CHU Lille,undefined
[35] Université de Lille,undefined
[36] Sainte-Justine Hospital,undefined
[37] Université de Montréal,undefined
来源：
Nature Reviews Gastroenterology & Hepatology | 2023年 / 20卷
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摘要：
Oesophageal atresia–tracheoesophageal fistula (EA-TEF) is a common congenital digestive disease. Patients with EA-TEF face gastrointestinal, surgical, respiratory, otolaryngological, nutritional, psychological and quality of life issues in childhood, adolescence and adulthood. Although consensus guidelines exist for the management of gastrointestinal, nutritional, surgical and respiratory problems in childhood, a systematic approach to the care of these patients in adolescence, during transition to adulthood and in adulthood is currently lacking. The Transition Working Group of the International Network on Oesophageal Atresia (INoEA) was charged with the task of developing uniform evidence-based guidelines for the management of complications through the transition from adolescence into adulthood. Forty-two questions addressing the diagnosis, treatment and prognosis of gastrointestinal, surgical, respiratory, otolaryngological, nutritional, psychological and quality of life complications that patients with EA-TEF face during adolescence and after the transition to adulthood were formulated. A systematic literature search was performed based on which recommendations were made. All recommendations were discussed and finalized during consensus meetings, and the group members voted on each recommendation. Expert opinion was used when no randomized controlled trials were available to support the recommendation. The list of the 42 statements, all based on expert opinion, was voted on and agreed upon.
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页码：735 / 755
页数：20
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