Validation of an instrument to assess informal caregivers’ perceptions about the delivery of patient-centred care to people with intellectual disabilities in residential settings

Gerteis M(1993)What patients really want Health Manag Q 15 2-6

Edgman-Levitan S(2000)Patient-centredness: a conceptual framework and review of the empirical literature Soc Sci Med 51 1087-1110

Walker JD(2009)What patient-centered should mean: confessions of an extremist Health Aff (Millwood) 28 555-565

Stokes DM(2010)If you build it, will they come? Designing truly patient-centered health care Health Aff (Millwood) 29 914-920

Cleary PD(2012)A framework for making patient-centered care front and center Perm J 16 49-53

Delbanco TL(2013)What are the core elements of patient-centred care? A narrative review and synthesis of the literature from health policy, medicine and nursing J Adv Nurs 69 4-15

Mead N(2013)Patient-centered care and outcomes: a systematic review of the literature Med Care Res Rev 70 351-379

Bower P(2015)Exploring views on what is important for patient-centred care in end-stage renal disease using Q methodology BMC Nephrol 16 74-22

Berwick DM(2017)Validation of an instrument to assess the delivery of patient-centred care to people with intellectual disabilities as perceived by professionals BMC Health Serv Res 17 472-80

Bechtel C(1997)Predictors and outcomes of the end of co-resident caregiving in aging families of adults with mental retardation or mental illness Fam Relat 46 13-37

Gerteis M(1993)What patients really want Health Manag Q 15 2-6

Edgman-Levitan S(2000)Patient-centredness: a conceptual framework and review of the empirical literature Soc Sci Med 51 1087-1110

Walker JD(2009)What patient-centered should mean: confessions of an extremist Health Aff (Millwood) 28 555-565

Stokes DM(2010)If you build it, will they come? Designing truly patient-centered health care Health Aff (Millwood) 29 914-920

Cleary PD(2012)A framework for making patient-centered care front and center Perm J 16 49-53

Delbanco TL(2013)What are the core elements of patient-centred care? A narrative review and synthesis of the literature from health policy, medicine and nursing J Adv Nurs 69 4-15

Mead N(2013)Patient-centered care and outcomes: a systematic review of the literature Med Care Res Rev 70 351-379

Bower P(2015)Exploring views on what is important for patient-centred care in end-stage renal disease using Q methodology BMC Nephrol 16 74-22

Berwick DM(2017)Validation of an instrument to assess the delivery of patient-centred care to people with intellectual disabilities as perceived by professionals BMC Health Serv Res 17 472-80

Bechtel C(1997)Predictors and outcomes of the end of co-resident caregiving in aging families of adults with mental retardation or mental illness Fam Relat 46 13-37