Patient-Reported Outcomes in Heart Failure: Existing Measures and Future Uses

被引:22
作者
Thompson L.E. [1 ]
Bekelman D.B. [2 ,3 ,4 ,6 ]
Allen L.A. [1 ]
Peterson P.N. [1 ,2 ,5 ]
机构
[1] Division of Cardiology, University of Colorado School of Medicine, 12631 East 17th Avenue, Campus Box B-130, Aurora, 80045, CO
[2] Colorado Cardiovascular Outcomes Research (CCOR) Consortium, Denver, CO
[3] Department of Veterans Affairs, Eastern Colorado Health Care System, Denver, CO
[4] Division of General Internal Medicine, University of Colorado School of Medicine, Aurora, CO
[5] Division of Cardiology, Denver Health Medical Center, MC 0960, 777 Bannock St, Denver, 80204, CO
[6] Denver VA Research (151), 1055 Clermont Street, Denver, 80220, CO
关键词
Electronic health record; Heart failure; Patient-centered care; Patient-reported health status; Patient-reported outcomes;
D O I
10.1007/s11897-015-0253-9
中图分类号
学科分类号
摘要
Patient-reported outcomes (PROs) are any report obtained directly from a patient about how they feel or function in relation to their health condition and its therapies. Strong support for PROs exists at multiple levels of the health-care community from regulatory boards to clinical researchers. PROs are particularly important in heart failure because it is a common chronic illness marked with acute exacerbations, often requiring hospitalization, and significant symptom burden. Use of PROs to understand patient perspectives will help providers deliver more patient-centered care, and thus improve the quality of care. This review provides a contemporary overview of the current state of PROs in heart failure and suggests future directions and opportunities to advance PRO use to provide more comprehensive care. Advancing PRO measurement along with incorporating longitudinal measures in national databases and local electronic health records will serve to improve patient-centered care for patients with heart failure. © 2015, Springer Science+Business Media New York.
引用
收藏
页码:236 / 246
页数:10
相关论文
共 95 条
[1]  
Cochrane handbook for systematic reviews of interventions, 5, (2008)
[2]  
Go A.S., Et al., Heart disease and stroke statistics—2013 update: a report from the American Heart Association, Circulation, 127, 1, pp. 6-245, (2013)
[3]  
Patrick D.L., Et al., Patient-reported outcomes to support medical product labeling claims: FDA perspective, Value Health, 10, pp. 125-137, (2007)
[4]  
Youngblut J.M., Casper G.R., Focus on psychometrics single-item indicators in nursing research, Res Nurs Health, 16, 6, pp. 459-465, (1993)
[5]  
Fan X., Lee K.S., Frazier S.K., Lennie T.A., Moser D.K., Psychometric testing of the Duke Activity Status Index in patients with heart failure, Eur J Cardiovasc Nurs, (2014)
[6]  
Hlatky M.A., Et al., A brief self-administered questionnaire to determine functional capacity (the Duke Activity Status Index), Am J Cardiol, 64, 10, pp. 651-654, (1989)
[7]  
Ware J.E., SF-36 health survey update, Spine, 25, 24, pp. 3130-3139, (2000)
[8]  
Rector T., Kubo S., Cohn J., Patients’ self-assessment of their congestive heart failure. Part 2: content, reliability and validity of a new measure, the Minnesota Living with Heart Failure Questionnaire, Heart Fail, 3, 5, pp. 198-209, (1987)
[9]  
Green C.P., Et al., Development and evaluation of the Kansas City Cardiomyopathy Questionnaire: a new health status measure for heart failure, J Am Coll Cardiol, 35, 5, pp. 1245-1255, (2000)
[10]  
Ware J., Kosinski M., Keller S.D., A 12-Item Short-Form Health Survey: construction of scales and preliminary tests of reliability and validity, Med Care, 34, 3, pp. 220-233, (1996)