Parent-to-parent peer support for parents of children with a disability: A mixed method study

被引:78
作者
Bray, Lucy [1 ,2 ]
Carter, Bernie [1 ,2 ]
Sanders, Caroline [2 ,3 ]
Blake, Lucy [1 ]
Keegan, Kimberley [2 ]
机构
[1] Edge Hill Univ, Fac Hlth & Social Care, Ormskirk, England
[2] Alder Hey Childrens NHS Fdn Trust, Childrens Nursing Res Unit, Liverpool, Merseyside, England
[3] Univ Northern British Columbia, Prince George, BC, Canada
关键词
Parent; Peer to peer parenting support; Befriending; Parent well being; Disability; FAMILY; STRESS; HEALTH;
D O I
10.1016/j.pec.2017.03.004
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Objectives: This paper will report on the findings of a study which investigated the influence of a befriending (parent-to-parent peer support) scheme on parents whose children have a disability or additional need. The scheme operated from an acute children's tertiary setting in the UK. Methods: A prospective concurrent mixed method design collected interview (n = 70) and questionnaire (n = 68) data at two time-points from befrienders (n = 13) and befriendees (n = 26). Results: The main qualitative findings of the study relate to the different degrees parents (befriendees and befrienders) moved from being lost, to finding and being a guide and getting to a better place. The quantitative findings demonstrate that parent-to-parent peer support has a positive influence on parents' levels of psychological distress and their ability to cope with being a parent of a child with a disability. Conclusion: The befriending scheme acted as a catalyst for many parents to move towards a place where they could grow and begin to flourish and thrive. Practice implications: Professionals should inform parents who have a child with a disability that peer-to-peer parenting support schemes are a valuable and appropriate source of support and help. (C) 2017 The Author(s). Published by Elsevier Ireland Ltd.
引用
收藏
页码:1537 / 1543
页数:7
相关论文
共 29 条
[21]  
QUINE L, 1987, DEV MED CHILD NEUROL, V29, P232
[22]   Meeting the needs of parents around the time of diagnosis of disability among their children: Evaluation of a novel program for information, support, and liaison by key workers [J].
Rahi, JS ;
Manaras, I ;
Tuomainen, H ;
Hundt, GL .
PEDIATRICS, 2004, 114 (04) :E477-E482
[23]  
Resendez M.G., 2000, J CHILD FAM STUD, V9, P449, DOI [10.1023/A:1009483425999, DOI 10.1023/A:1009483425999]
[24]   Explaining the parental stress of fathers and mothers caring for a child with intellectual disability:: a Double ABCX Model [J].
Saloviita, T ;
Itälinna, M ;
Leinonen, E .
JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2003, 47 :300-312
[25]   Peer support for parents of children with chronic disabling conditions: a systematic review of quantitative and qualitative studies [J].
Shilling, Val ;
Morris, Christopher ;
Thompson-Coon, Jo ;
Ukoumunne, Obioha ;
Rogers, Morwenna ;
Logan, Stuart .
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY, 2013, 55 (07) :602-609
[26]   The benefits of mutual support groups for parents of children with disabilities [J].
Solomon, M ;
Pistrang, N ;
Barker, C .
AMERICAN JOURNAL OF COMMUNITY PSYCHOLOGY, 2001, 29 (01) :113-132
[27]   Childhood illness-related parenting stress: The pediatric inventory for parents [J].
Streisand, R ;
Braniecki, S ;
Tercyak, KP ;
Kazak, AE .
JOURNAL OF PEDIATRIC PSYCHOLOGY, 2001, 26 (03) :155-162
[28]   Accentuate the positive to mitigate the negative: Mother psychological coping resources and family adjustment in childhood disability [J].
Trute, Barry ;
Benzies, Karen M. ;
Worthington, Catherine ;
Reddon, John R. ;
Moore, Melanie .
JOURNAL OF INTELLECTUAL & DEVELOPMENTAL DISABILITY, 2010, 35 (01) :36-43
[29]   The PedsQL™ in pediatric asthma:: Reliability and validity of the pediatric quality of life inventory™ generic core scales and asthma module [J].
Varni, JW ;
Burwinkle, TM ;
Rapoff, MA ;
Kamps, JL ;
Olson, N .
JOURNAL OF BEHAVIORAL MEDICINE, 2004, 27 (03) :297-318