Parent-to-parent peer support for parents of children with a disability: A mixed method study

被引:78
作者
Bray, Lucy [1 ,2 ]
Carter, Bernie [1 ,2 ]
Sanders, Caroline [2 ,3 ]
Blake, Lucy [1 ]
Keegan, Kimberley [2 ]
机构
[1] Edge Hill Univ, Fac Hlth & Social Care, Ormskirk, England
[2] Alder Hey Childrens NHS Fdn Trust, Childrens Nursing Res Unit, Liverpool, Merseyside, England
[3] Univ Northern British Columbia, Prince George, BC, Canada
关键词
Parent; Peer to peer parenting support; Befriending; Parent well being; Disability; FAMILY; STRESS; HEALTH;
D O I
10.1016/j.pec.2017.03.004
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Objectives: This paper will report on the findings of a study which investigated the influence of a befriending (parent-to-parent peer support) scheme on parents whose children have a disability or additional need. The scheme operated from an acute children's tertiary setting in the UK. Methods: A prospective concurrent mixed method design collected interview (n = 70) and questionnaire (n = 68) data at two time-points from befrienders (n = 13) and befriendees (n = 26). Results: The main qualitative findings of the study relate to the different degrees parents (befriendees and befrienders) moved from being lost, to finding and being a guide and getting to a better place. The quantitative findings demonstrate that parent-to-parent peer support has a positive influence on parents' levels of psychological distress and their ability to cope with being a parent of a child with a disability. Conclusion: The befriending scheme acted as a catalyst for many parents to move towards a place where they could grow and begin to flourish and thrive. Practice implications: Professionals should inform parents who have a child with a disability that peer-to-peer parenting support schemes are a valuable and appropriate source of support and help. (C) 2017 The Author(s). Published by Elsevier Ireland Ltd.
引用
收藏
页码:1537 / 1543
页数:7
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