Palliative Care, Hospice, and Advance Care Planning: Views of People Living with HIV and Other Chronic Conditions

被引：16

作者：

Slomka, Jacquelyn ^{[1
]}

Prince-Paul, Maryjo ^{[1
]}

Webel, Allison ^{[1
]}

Daly, Barbara J. ^{[2
]}

机构：

[1] Case Western Reserve Univ, Frances Payne Bolton Sch Nursing, Cleveland, OH 44106 USA

[2] Case Western Reserve Univ, Frances Payne Bolton Sch Nursing, Oncol Nursing, Cleveland, OH 44106 USA

来源：

JANAC-JOURNAL OF THE ASSOCIATION OF NURSES IN AIDS CARE | 2016年 / 27卷 / 04期

基金：

美国国家卫生研究院;

关键词：

advance care planning; HIV; multiple chronic conditions; palliative care; CELL LUNG-CANCER; OF-LIFE; INFECTED PATIENTS; DIRECTIVES; SYMPTOMS; END; COMMUNICATION; DEFINITIONS; PREFERENCES; TRANSITION;

D O I：

10.1016/j.jana.2016.02.003

中图分类号：

R1 [预防医学、卫生学];

学科分类号：

1004 ; 120402 ;

摘要：

People living with HIV (PLWH) who survive to older adulthood risk developing multiple chronic medical conditions. Health policymakers recognize the role of early palliative care and advance care planning in improving health quality for at-risk populations, but misperceptions about palliative care, hospice, and advance care planning are common. Before testing a program of early palliative care for PLWH and other chronic conditions, we conducted focus groups to elicit perceptions of palliative care, hospice, and advance care planning in our target population. Overall, participants were unfamiliar with the term palliative care, confused concepts of palliative care and hospice, and/or associated hospice care with dying. Participants misunderstood advance care planning, but valued communication about health care preferences. Accepting palliative care was contingent on distinguishing it from hospice and historical memories of HIV and dying. Provision of high-quality, comprehensive care will require changing public perceptions and individuals' views in this high-risk population. Copyright (C) 2016 Association of Nurses in AIDS Care

引用

页码：476 / 484

页数：9

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