Successfully Negotiating Life Challenges: Learnings From Adults With Cerebral Palsy

被引:12
作者
Gaskin, Cadeyrn J. [1 ]
Imms, Christine [3 ]
Dagley, Gavin R. [2 ]
Msall, Michael E. [5 ]
Reddihough, Dinah [4 ,6 ]
机构
[1] Gaskin Res, Res Consultancy, Melbourne, Vic, Australia
[2] Gaskin Res, Melbourne, Vic, Australia
[3] Univ Melbourne, Apex Australia Fdn Chair Neurodev & Disabil, Parkville, Vic, Australia
[4] Univ Melbourne, Dept Paediat, Parkville, Vic, Australia
[5] Univ Chicago, Kennedy Res Ctr, Chicago, IL 60637 USA
[6] Royal Childrens Hosp, Murdoch Childrens Res Inst, Parkville, Vic, Australia
基金
英国医学研究理事会;
关键词
cerebral palsy; adults; participation; qualitative; interpretive description; Australia; YOUNG-ADULTS; PHYSICAL-ACTIVITY; ADOLESCENTS; PARTICIPATION; CLASSIFICATION; OUTCOMES; DETERMINANTS; INDIVIDUALS; TRANSITION; EMPLOYMENT;
D O I
10.1177/10497323211023449
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Despite facing multidimensional inequalities, some adults with cerebral palsy achieve positive social outcomes (e.g., independent living, employment, and romantic relationships). We interviewed 23 adults (aged 23-47 years) about how they successfully negotiated the challenges of adulthood. Common to all life situations was doing what others (people without cerebral palsy) do. Origins of success lay in their formative experiences (e.g., typical parental expectations with commensurate support and acceptance and supported involvement in school life). Their present functioning (e.g., positive self-concept, well-honed social skills, and physical fitness) combined with present contexts (e.g., expectations of involvement in adult activities and accessible and accommodating environments) enabled them to find ways of negotiating challenges. Finding a way included drawing on knowledge and skills, gravitating toward those who are comfortable with difference, maintaining function, and using natural and paid supports. The findings suggest multiple avenues for supporting people with cerebral palsy to achieve positive social outcomes.
引用
收藏
页码:2176 / 2193
页数:18
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