Descriptive Report of the Impact of Fatigue and Current Management Strategies in Cerebral Palsy

被引:12
作者
Brunton, Laura K. [1 ]
机构
[1] Western Univ, London, ON, Canada
基金
加拿大健康研究院;
关键词
adolescents; cerebral palsy; fatigue; young adults; GROSS MOTOR FUNCTION; YOUNG-ADULTS; PHYSICAL-ACTIVITY; CHILDREN; ADOLESCENTS; SEVERITY;
D O I
10.1097/PEP.0000000000000490
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
Purpose: To describe the effect of fatigue and self-management practices for adolescents and young adults with cerebral palsy. Methods: A survey of 124 people with cerebral palsy with the Fatigue Impact and Severity Self-Assessment. Results: Participants in Gross Motor Function Classification System (GMFCS) level I experienced little effect of fatigue, with high proportions of this group disagreeing to statements about fatigue impacting their general activities, mobility, and social activities. Participants in GMFCS levels II to V reported effect of fatigue on activities. Differences between groups were evident in questions related to fatigue interference with length of time for physical activity and with motivations to participate in social activities. All other items related to management of fatigue were not significantly different between groups. Conclusions: Fatigue effect is greater for participants with more functional limitations. The lack of significant differences between groups, on the Management and Activity Modification subscale, indicates more research is needed regarding strategies for fatigue management.
引用
收藏
页码:135 / 141
页数:7
相关论文
共 19 条
[1]  
Brunton LK, 2017, FATIGUE, V5, P5, DOI 10.1080/21641846.2017.1264950
[2]   Construction and validation of the fatigue impact and severity self-assessment for youth and young adults with cerebral palsy [J].
Brunton, Laura K. ;
Bartlett, Doreen J. .
DEVELOPMENTAL NEUROREHABILITATION, 2017, 20 (05) :274-279
[3]   The bodily experience of cerebral palsy: a journey to self-awareness [J].
Brunton, Laura K. ;
Bartlett, Doreen J. .
DISABILITY AND REHABILITATION, 2013, 35 (23) :1981-1990
[4]  
Dillman DA., 2000, Mail and Internet surveys: The tailored design method
[5]   Health issues in young adults with cerebral palsy: Towards a life-span perspective [J].
Hilberink, Sander R. ;
Roebroeck, Marij E. ;
Nieuwstraten, Wilbert ;
Jalink, Loes ;
Verheijden, Johannes M. A. ;
Stam, Henk J. .
JOURNAL OF REHABILITATION MEDICINE, 2007, 39 (08) :605-611
[6]   Locomotion skills in adults with cerebral palsy [J].
Jahnsen, R ;
Villien, L ;
Egeland, T ;
Stanghelle, JK ;
Holm, I .
CLINICAL REHABILITATION, 2004, 18 (03) :309-316
[7]   Fatigue in adults with cerebral palsy in Norway compared with the general population [J].
Jahnsen, R ;
Villien, L ;
Stanghelle, JK ;
Holm, I .
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY, 2003, 45 (05) :296-303
[8]  
Jahnsen R., 2003, Advances in Physiotherapy, V5, P21, DOI DOI 10.1080/14038190310005779
[9]   THE FATIGUE SEVERITY SCALE - APPLICATION TO PATIENTS WITH MULTIPLE-SCLEROSIS AND SYSTEMIC LUPUS-ERYTHEMATOSUS [J].
KRUPP, LB ;
LAROCCA, NG ;
MUIRNASH, J ;
STEINBERG, AD .
ARCHIVES OF NEUROLOGY, 1989, 46 (10) :1121-1123
[10]   Fatigue is a major issue for children and adolescents with physical disabilities [J].
Maher, Carol ;
Crettenden, Angela ;
Evans, Kerry ;
Thiessen, Myra ;
Toohey, Monica ;
Watson, Amanda ;
Dollman, James .
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY, 2015, 57 (08) :742-747