Psychometric Properties of the Psychosocial Assessment Tool-General in Adolescents and Young Adults With Sickle Cell Disease

被引:17
|
作者
Crosby, Lori E. [1 ,2 ]
Joffe, Naomi E. [1 ,2 ]
Reynolds, Nina [3 ]
Peugh, James L. [1 ,2 ]
Manegold, Ellen [4 ]
Pai, Ahna L. H. [1 ,2 ]
机构
[1] Cincinnati Childrens Hosp Med Ctr, Div Behav Med & Clin Psychol, 3333 Burnet Ave,MLC 3015, Cincinnati, OH 45229 USA
[2] Univ Cincinnati, Coll Med, Dept Pediat, Cincinnati, OH 45221 USA
[3] Univ Alabama Birmingham, Dept Pediat, Birmingham, AL USA
[4] W Virginia Univ, Dept Psychol, Morgantown, WV 26506 USA
基金
美国国家卫生研究院;
关键词
chronic illness; family; pediatric; psychosocial risk; quality of life; screening; QUALITY-OF-LIFE; RISK; CHILDREN; HEALTH; PAIN; TRUST; CARE; MANAGEMENT; MORTALITY; FAMILIES;
D O I
10.1093/jpepsy/jsv073
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
ObjectivesaEuro integral Adolescents and young adults (AYAs) with sickle cell disease (SCD) experience psychosocial factors that increase their risk for poor disease management and health outcomes. Routine assessment of psychosocial factors that perpetuate health disparities is recommended. The Psychosocial Assessment Tool 2.0_General (PAT2.0_GEN) AYA is a psychosocial screener with potential clinical utility in AYAs with SCD. This article is a preliminary examination of the internal consistency and predictive validity of this measure in a sample of 45 AYAs with SCD. MethodsaEuro integral Participants completed the PAT2.0_GEN AYA, Pediatric Quality of Life Inventory, and a demographics form; psychosocial referral data were also collected. aEuro integral ResultsaEuro integral Internal consistency for the PAT2.0_GEN AYA was acceptable except for the Family Beliefs (0.67) and Structure and Resources subscales (0.37). PAT2.0_GEN AYA scores were associated with an increased likelihood of referral for intervention within 4 months. aEuro integral ConclusionsaEuro integral The PAT2.0_GEN AYA holds promise as a screener to identify psychosocial risk factors that may compromise health outcomes in AYAs with SCD.
引用
收藏
页码:397 / 405
页数:9
相关论文
共 50 条
  • [21] Empirically Derived Profiles of Health-Related Quality of Life in Youth and Young Adults with Sickle Cell Disease
    Keenan, Mary E.
    Loew, Megan
    Berlin, Kristoffer S.
    Hodges, Jason
    Alberts, Nicole M.
    Hankins, Jane S.
    Porter, Jerlym S.
    JOURNAL OF PEDIATRIC PSYCHOLOGY, 2021, 46 (03) : 293 - 303
  • [22] Pilot of the Chronic Disease Self-Management Program for Adolescents and Young Adults With Sickle Cell Disease
    Crosby, Lori E.
    Joffe, Naomi E.
    Peugh, James
    Ware, Russell E.
    Britto, Maria T.
    JOURNAL OF ADOLESCENT HEALTH, 2017, 60 (01) : 120 - 123
  • [23] Psychosocial Health in Adults With Sickle Cell Disease
    Adeyinka, Sharon
    Griggs, Stephanie
    JOURNAL OF PSYCHOSOCIAL NURSING AND MENTAL HEALTH SERVICES, 2025,
  • [24] Beyond the transition of adolescents and young adults with sickle cell disease to adult care: Role of geography
    Anderson, Nina
    Eckman, James R.
    Ballas, Samir K.
    AMERICAN JOURNAL OF HEMATOLOGY, 2017, 92 (06) : E110 - E112
  • [25] The Teen Symposium: Engaging Adolescents and Young Adults With Sickle Cell Disease in Clinical Care and Research
    Crosby, Lori E.
    Strong, Heather
    Johnson, Alisha
    Mitchell, Monica J.
    CLINICAL PRACTICE IN PEDIATRIC PSYCHOLOGY, 2020, 8 (02) : 139 - 149
  • [26] A cohort study on psychosocial adjustment and psychopathology in adolescents and young adults with congenital heart disease
    Freitas, Isabela Ribeiro
    Castro, Marta
    Sarmento, Sofia Lourenco
    Moura, Claudia
    Viana, Victor
    Areias, Jose Carlos
    Guimaraes Areias, Maria Emilia
    BMJ OPEN, 2013, 3 (01):
  • [27] Measuring transition readiness in adolescents and young adults with sickle cell disease using the transition readiness assessment questionnaire
    Oberoi, Anjali R.
    Patterson, Alyssa
    Sobota, Amy
    PEDIATRIC BLOOD & CANCER, 2022, 69 (02)
  • [28] Psychosocial adjustment, psychiatric morbidity and quality of life in adolescents and young adults with congenital heart disease
    Coelho, Rosalia
    Teixeira, Flavio
    Silva, Ana Margarida
    Vaz, Claudia
    Vieira, Daniela
    Proenca, Cidalia
    Moura, Claudia
    Viana, Victor
    Areias, Jose Carlos
    Guimaraes Areias, Maria Emilia
    REVISTA PORTUGUESA DE CARDIOLOGIA, 2013, 32 (09) : 657 - 664
  • [29] Correlates of successful transition in young adults with sickle cell disease
    Darbari, Isha
    Jacobs, Emily
    Gordon, Olivia
    Weiss, Diane
    Winship, Kim
    Casella, James F.
    Strouse, John J.
    Takemoto, Clifford M.
    PEDIATRIC BLOOD & CANCER, 2019, 66 (12)
  • [30] Hematopoietic cell transplant compared with standard care in adolescents and young adults with sickle cell disease
    Walters, Mark C.
    Eapen, Mary
    Liu, Yiwen
    El Rassi, Fuad
    Waller, Edmund K.
    Levine, John E.
    Strouse, John J.
    Antin, Joseph H.
    Parikh, Suhag H.
    Bakshi, Nitya
    Dampier, Carlton
    Jaroscak, Jennifer J.
    Bergmann, Shayla
    Wong, Trisha
    Kota, Vamsi
    Pace, Betty
    Lekakis, Lazaros J.
    Lulla, Premal
    Nickel, Robert S.
    Kasow, Kimberly A.
    Popat, Uday
    Smith, Wally
    Yu, Lolie
    Difronzo, Nancy
    Geller, Nancy
    Kamani, Naynesh
    Klings, Elizabeth S.
    Hassell, Kathryn
    Mendizabal, Adam
    Sullivan, Keith
    Neuberg, Donna
    Krishnamurti, Lakshmanan
    BLOOD ADVANCES, 2025, 9 (05) : 955 - 965