Family-centred approaches to healthcare interventions in chronic diseases in adults: a quantitative systematic review

被引:74
作者
Deek, Hiba [1 ]
Hamilton, Sandra [2 ]
Brown, Nicola [3 ]
Inglis, Sally C. [1 ]
Digiacomo, Michelle [1 ]
Newton, Phillip J. [1 ]
Noureddine, Samar [4 ]
MacDonald, Peter S. [5 ]
Davidson, Patricia M. [6 ]
机构
[1] Univ Technol Sydney, Fac Hlth, Ctr Cardiovasc & Chron Care, Broadway, NSW, Australia
[2] Univ Western Australia, Western Australian Ctr Rural Hlth, Geraldton, WA, Australia
[3] Univ Technol Sydney, Fac Hlth, Broadway, NSW, Australia
[4] Amer Univ Beirut, Rafic Hariri Sch Nursing, Lebanon, NH USA
[5] St Vincent Hosp, Victor Chang Inst, Transplantat Res Lab, Darlinghurst, NSW, Australia
[6] Johns Hopkins Sch Nursing, Baltimore, MD USA
关键词
chronic disease; family; literature review; nursing; self-care; spouse; QUALITY-OF-LIFE; HEART-FAILURE; SELF-MANAGEMENT; RANDOMIZED-TRIAL; SOCIAL SUPPORT; BREAST-CANCER; FOLLOW-UP; EDUCATION; PROGRAM; PERSPECTIVES;
D O I
10.1111/jan.12885
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Background. Increasingly there is a focus on self-care strategies for both malignant and non-malignant conditions. Models of self-care interventions have focussed on the individual and less on the broader context of family and society. In many societies, decision-making and health seeking behaviours, involve family members. Objective. To identify elements of effective family-centred self-care interventions that are likely to improve outcomes of adults living with chronic conditions. Design. Review paper. Data sources. MEDLINE (Ovid), CINAHL, Academic Search Complete, PsychInfo and Scopus between 2000-2014. Review methods. Quantitative studies targeting patient outcomes through family-centred interventions in adults were retrieved using systematic methods in January, 2015. Search terms used were: 'family', 'spouse', 'carer', 'caregiver', 'chronic', 'chronic disease', 'self-care', 'self-management' and 'self-efficacy'. Reference lists were reviewed. Risk of bias assessment was performed using the Cochrane Collaboration's tool. Data were reported using a narrative summary approach. Results. Ten studies were identified. Improvements were noted in readmission rates, emergency department presentations, and anxiety levels using family-centred interventions compared with controls. Elements of effective interventions used were a family-centred approach, active learning strategy and transitional care with appropriate follow-up. Conclusions. Involving the family in self-care has shown some positive results for patients with chronic conditions. The benefits of family-centred care may be more likely in specific socio-cultural contexts. Limitations. The review has year limits and further research needs to identify support for both the patients and family caregivers.
引用
收藏
页码:968 / 979
页数:12
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共 67 条
[51]   Successes of a National Study of the Chronic Disease Self-Management Program Meeting the Triple Aim of Health Care Reform [J].
Ory, Marcia G. ;
Ahn, SangNam ;
Jiang, Luohua ;
Smith, Matthew Lee ;
Ritter, Philip L. ;
Whitelaw, Nancy ;
Lorig, Kate .
MEDICAL CARE, 2013, 51 (11) :992-998
[52]   Identifying key domains of health-related quality of life for patients with Chronic Obstructive Pulmonary Disease: the patient perspective [J].
Paap, Muirne C. S. ;
Bode, Christina ;
Lenferink, Lonneke I. M. ;
Groen, Lianne C. ;
Terwee, Caroline B. ;
Ahmed, Sara ;
Eilayyan, Owis ;
van der Palen, Job .
HEALTH AND QUALITY OF LIFE OUTCOMES, 2014, 12
[53]   Reducing Readmissions Using Teach-Back Enhancing Patient and Family Education [J].
Peter, Debra ;
Robinson, Paula ;
Jordan, Marie ;
Lawrence, Susan ;
Casey, Krista ;
Salas-Lopez, Debbie .
JOURNAL OF NURSING ADMINISTRATION, 2015, 45 (01) :35-42
[54]   Family Caregivers of Patients With Heart Failure A Longitudinal Study [J].
Pressler, Susan J. ;
Gradus-Pizlo, Irmina ;
Chubinski, Suzanne D. ;
Smith, George ;
Wheeler, Susanne ;
Sloan, Rebecca ;
Jung, Miyeon .
JOURNAL OF CARDIOVASCULAR NURSING, 2013, 28 (05) :417-428
[55]   Couple-focused support to improve HIV medication adherence: a randomized controlled trial [J].
Remien, RH ;
Stirratt, MJ ;
Dolezal, C ;
Dognin, JS ;
Wagner, GJ ;
Carballo-Dieguez, A ;
El-Bassel, N ;
Jung, TM .
AIDS, 2005, 19 (08) :807-814
[56]   A situation-specific theory of heart failure self-care [J].
Riegel, Barbara ;
Dickson, Victoria Vaughan .
JOURNAL OF CARDIOVASCULAR NURSING, 2008, 23 (03) :190-196
[57]   Beyond the "self" in self-efficacy: Spouse confidence predicts patient survival following heart failure [J].
Rohrbaugh, MJ ;
Shoham, V ;
Coyne, JC ;
Cranford, JA ;
Sonnega, JS ;
Nicklas, JM .
JOURNAL OF FAMILY PSYCHOLOGY, 2004, 18 (01) :184-193
[58]   Emerging models for mobilizing family support for chronic disease management: a structured review [J].
Rosland, Ann-Marie ;
Piette, John D. .
CHRONIC ILLNESS, 2010, 6 (01) :7-21
[59]   The Individual and Family Self-Management Theory: Background and perspectives on context, process, and outcomes [J].
Ryan, Polly ;
Sawin, Kathleen J. .
NURSING OUTLOOK, 2009, 57 (04) :217-225
[60]   Supportive Relationships, Self-care Confidence, and Heart Failure Self-care [J].
Salyer, Jeanne ;
Schubert, Christine M. ;
Chiaranai, Chantira .
JOURNAL OF CARDIOVASCULAR NURSING, 2012, 27 (05) :384-393