Development of a mHealth Real-Time Pain Self-Management App for Adolescents With Cancer: An Iterative Usability Testing Study

被引:71
作者
Jibb, Lindsay A. [1 ,7 ]
Cafazzo, Joseph A. [7 ,8 ]
Nathan, Paul C. [2 ,7 ]
Seto, Emily [7 ,9 ]
Stevens, Bonnie J. [3 ,7 ]
Nguyen, Cynthia [4 ]
Stinson, Jennifer N. [5 ,6 ,7 ]
机构
[1] Hosp Sick Children, Div Haematol Oncol, Toronto, ON, Canada
[2] Hosp Sick Children, Div Haematol Oncol, Aftercare Program, Toronto, ON, Canada
[3] Hosp Sick Children, Nursing Res, Toronto, ON, Canada
[4] Hosp Sick Children, Dept Child Hlth Evaluat Sci, Toronto, ON, Canada
[5] Hosp Sick Children, Child Hlth, Toronto, ON, Canada
[6] Hosp Sick Children, Dept Anesthesia & Pain Med, Toronto, ON, Canada
[7] Univ Toronto, Toronto, ON, Canada
[8] Univ Hlth Network, Ctr Global EHlth Innovat, Toronto, ON, Canada
[9] Univ Hlth Network, Toronto, ON, Canada
关键词
adolescent with cancer; pain self-management; mHealth; smartphone; usability; PEDIATRIC ONCOLOGY PATIENTS; QUALITY-OF-LIFE; SYMPTOM OCCURRENCE; MYELOSUPPRESSIVE CHEMOTHERAPY; CHILDREN; PARENTS; HEALTH; INTERVENTIONS; DISTRESS; FEASIBILITY;
D O I
10.1177/1043454217697022
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Purpose: A user-centered design approach was used to refine the mHealth Pain Squad+ real-time pain self-management app for adolescents with cancer for its usability (defined as being easy to use, easy to understand, efficient to complete, and acceptable). Method: Three iterative usability testing cycles involving adolescent observation and interview were used to achieve this objective. During each cycle, adolescents used the app while thinking aloud about issues encountered. Observed difficulties and errors were recorded and a semistructured interview about the experience was conducted. Using a qualitative conventional content analysis approach, themes related to app usability were identified. Results: Participants required an average of 4.3 minutes to complete the pain assessment component of Pain Squad+. Overall, the app was acceptable. Problematic issues related to software malfunction, interface design flaws, and confusing text. Software revisions were made to address each issue. Conclusion: The multifaceted usability approach used provided insight into how a real-time app can be made acceptable to adolescents with cancer and succeeded in developing a Pain Squad+ app that is fit for future effectiveness testing.
引用
收藏
页码:283 / 294
页数:12
相关论文
共 57 条
[21]   Variations in Pain, Sleep, and Activity During Hospitalization in Children With Cancer [J].
Jacob, Eufemia ;
Hesselgrave, Joy ;
Sambuco, Gennaro ;
Hockenberry, Marilyn .
JOURNAL OF PEDIATRIC ONCOLOGY NURSING, 2007, 24 (04) :208-219
[22]   Psychological and Physical Interventions for the Management of Cancer-Related Pain in Pediatric and Young Adult Patients: An Integrative Review [J].
Jibb, Lindsay A. ;
Nathan, Paul C. ;
Stevens, Bonnie J. ;
Seto, Emily ;
Cafazzo, Joseph A. ;
Stephens, Nisha ;
Yohannes, Liza ;
Stinson, Jennifer N. .
ONCOLOGY NURSING FORUM, 2015, 42 (06) :E339-E357
[23]   A Smartphone-Based Pain Management App for Adolescents With Cancer: Establishing System Requirements and a Pain Care Algorithm Based on Literature Review, Interviews, and Consensus [J].
Jibb, Lindsay A. ;
Stevens, Bonnie J. ;
Nathan, Paul C. ;
Seto, Emily ;
Cafazzo, Joseph A. ;
Stinson, Jennifer N. .
JMIR RESEARCH PROTOCOLS, 2014, 3 (01)
[24]  
Kien Hoa Ly, 2015, Internet Interventions, V2, P60, DOI 10.1016/j.invent.2014.12.002
[25]   Impact of Caring for a Child With Cancer on Parents' Health-Related Quality of Life [J].
Klassen, Anne F. ;
Klaassen, Robert ;
Dix, David ;
Pritchard, Sheila ;
Yanofsky, Rochelle ;
O'Donnell, Maureen ;
Scott, Amie ;
Sung, Lillian .
JOURNAL OF CLINICAL ONCOLOGY, 2008, 26 (36) :5884-5889
[26]   Cognitive and usability engineering methods for the evaluation of clinical information systems [J].
Kushniruk, AW ;
Patel, VL .
JOURNAL OF BIOMEDICAL INFORMATICS, 2004, 37 (01) :56-76
[27]   "There's a Pain App for That" Review of Patient-targeted Smartphone Applications for Pain Management [J].
Lalloo, Chitra ;
Jibb, Lindsay A. ;
Rivera, Jordan ;
Agarwal, Arnav ;
Stinson, Jennifer N. .
CLINICAL JOURNAL OF PAIN, 2015, 31 (06) :557-563
[28]   Qualitative research - Grounded theory, mixed methods, and action research [J].
Lingard, Lorelei ;
Albert, Mathieu ;
Levinson, Wendy .
BMJ-BRITISH MEDICAL JOURNAL, 2008, 337 (7667)
[29]   The Relationship Between Parent Trait Anxiety and Parent-reported Pain, Solicitous Behaviors, and Quality of Life Impairment in Children With Cancer [J].
Link, Christopher J. ;
Fortier, Michelle A. .
JOURNAL OF PEDIATRIC HEMATOLOGY ONCOLOGY, 2016, 38 (01) :58-62
[30]   Social desirability response bias and self-report of psychological distress in pediatric chronic pain patients [J].
Logan, Deirdre E. ;
Claar, Robyn Lewis ;
Scharff, Lisa .
PAIN, 2008, 136 (03) :366-372