Anthropometric measurement standardization for a multicenter nutrition survey in children with spinal muscular atrophy

被引:12
作者
Bertoli, Simona [1 ]
Foppiani, Andrea [1 ]
De Amicis, Ramona [1 ]
Leone, Alessandro [1 ]
Mastella, Chiara [2 ]
Bassano, Michela [3 ]
Giaquinto, Ester [3 ]
Baranello, Giovanni [4 ]
Battezzati, Alberto [1 ]
机构
[1] Univ Milan, Int Ctr Assessment Nutr Status, Dept Food Environm & Nutr Sci DeFENS, Milan, Italy
[2] Policlin Hosp, Fdn IRCCS Ca Granda, Parents Early Habilitat Serv, SAPRE, Milan, Italy
[3] Osped Gen Provinciale M Bufalini, Dietet & Nutr Ctr, Auslromagna Cesena, Italy
[4] IRCCS, Dev Neurol Unit, Fdn Carlo Besta Neurol Inst, Milan, Italy
关键词
D O I
10.1038/s41430-019-0392-2
中图分类号
R15 [营养卫生、食品卫生]; TS201 [基础科学];
学科分类号
100403 ;
摘要
Spinal muscular atrophy (SMA) is a neuromuscular disease associated with nutritional status derangement and altered body composition. New drugs are changing the natural history of the disease, so now more than ever is important to focus on the correct assessment of nutritional status in SMA. We implemented a standardization process for the anthropometric measurement as part of our ongoing longitudinal study of growth patterns in SMA patients. It features a procedural manual, included in this communication, observers training and reliability assessment, of which we publish the values obtained in our pilot study. The standardization process was able to produce inter-observer reliability values in agreement with the literature and a procedure manual is now available for multicentre studies of nutritional status and body composition in SMA and possibly other pediatric neuromuscular disorders.
引用
收藏
页码:1646 / 1648
页数:3
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