The top 10 research priorities in diabetes and pregnancy according to women, support networks and healthcare professionals

被引:28
作者
Ayman, Goher [1 ]
Strachan, James A. [2 ]
McLennan, Niamh [3 ]
Malouf, Reem [1 ]
Lowe-Zinola, Jack [4 ]
Magdi, Fida [4 ]
Roberts, Nia [5 ]
Alderdice, Fiona [1 ,6 ]
Berneantu, Iuliana [1 ]
Breslin, Niki [1 ]
Byrne, Caroline [7 ]
Carnell, Sonya [1 ]
Churchill, David [4 ,8 ]
Grisoni, Jeannie [7 ]
Hirst, Jane E. [9 ,10 ]
Morris, Anna [11 ]
Murphy, Helen R. [7 ,12 ,13 ,14 ]
O'Brien, Jane [15 ]
Schmutz, Caroline [16 ]
Shah, Kamini [11 ]
Singal, Ankita S. [1 ]
Strachan, Mark W. J. [17 ]
Cowan, Katherine [18 ]
Knight, Marian [1 ]
机构
[1] Univ Oxford, Nuffield Dept Populat Hlth, Natl Perinatal Epidemiol Unit, Oxford OX3 7LF, England
[2] Univ Oxford, John Radcliffe Hosp, Med Sci Div, Oxford, England
[3] Univ Edinburgh, Queens Med Res Inst, MRC Ctr Reprod Hlth, Edinburgh, Midlothian, Scotland
[4] Royal Wolverhampton Hosp NHS Trust, New Cross Hosp, Wolverhampton, England
[5] Univ Oxford, Bodleian Hlth Care Libraries, Oxford, England
[6] Queens Univ Belfast, Sch Nursing & Midwifery, Belfast, Antrim, North Ireland
[7] Cambridge Univ Hosp NHS Fdn Trust, Cambridge, England
[8] Univ Wolverhampton, Wolverhampton, England
[9] Univ Oxford, Nuffield Dept Womens & Reprod Hlth, Oxford, England
[10] Oxford Univ Hosp NHS Fdn Trust, John Radcliffe Hosp, Oxford, England
[11] Diabetes UK, Wells Lawrence House, London, England
[12] Univ East Anglia, Norwich Med Sch, Norwich, Norfolk, England
[13] Kings Coll London, Div Womens Hlth, St Thomas Campus, London, England
[14] Norfolk & Norwich Univ Hosp, Elsie Bertram Diabet Ctr, Norwich, Norfolk, England
[15] Stepping Hill Hosp, Stockport NHS Fdn Trust, Stockport, Lancs, England
[16] JDRF Type 1 Diabet Char, London, England
[17] Western Gen Hosp, Metab Unit, Edinburgh, Midlothian, Scotland
[18] Univ Southampton, Natl Inst Hlth Res Evaluat, Trials & Studies Coordinating Ctr, James Lind Alliance, Southampton, Hants, England
关键词
diabetes mellitus; health priorities; perinatal care; post‐ natal care; pregnancy; prenatal care; research;
D O I
10.1111/dme.14588
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Aims To undertake a Priority Setting Partnership (PSP) to establish priorities for future research in diabetes and pregnancy, according to women with experience of pregnancy, and planning pregnancy, with any type of diabetes, their support networks and healthcare professionals. Methods The PSP used established James Lind Alliance (JLA) methodology working with women and their support networks and healthcare professionals UK-wide. Unanswered questions about the time before, during or after pregnancy with any type of diabetes were identified using an online survey and broad-level literature search. A second survey identified a shortlist of questions for final prioritisation at an online consensus development workshop. Results There were 466 responses (32% healthcare professionals) to the initial survey, with 1161 questions, which were aggregated into 60 unanswered questions. There were 614 responses (20% healthcare professionals) to the second survey and 18 questions shortlisted for ranking at the workshop. The top 10 questions were: diabetes technology, the best test for diabetes during pregnancy, diet and lifestyle interventions for diabetes management during pregnancy, emotional and well-being needs of women with diabetes pre- to post-pregnancy, safe full-term birth, post-natal care and support needs of women, diagnosis and management late in pregnancy, prevention of other types of diabetes in women with gestational diabetes, women's labour and birth experiences and choices and improving planning pregnancy. Conclusions These research priorities provide guidance for research funders and researchers to target research in diabetes and pregnancy that will achieve greatest value and impact.
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