Impact of patient education videos on genetic counseling outcomes after exome sequencing

被引：19

作者：

Hernan, Rebecca ^{[1
,2
]}

Cho, Megan T. ^{[1
,3
]}

Wilson, Ashley L. ^{[4
]}

Ahimaz, Priyanka ^{[2
]}

Au, Catherine ^{[4
]}

Berger, Sara M. ^{[4
]}

Guzman, Edwin ^{[4
]}

Primiano, Michelle ^{[4
]}

Shaw, Jessica E. ^{[4
]}

Ross, Meredith ^{[4
]}

Tabanfar, Leyla ^{[4
]}

Chilton, Ilana ^{[2
]}

Griffin, Emily ^{[2
]}

Ratner, Chana ^{[5
]}

Anyane-Yeboa, Kwame ^{[2
]}

Iglesias, Alejandro ^{[2
]}

Pisani, Laura ^{[2
]}

Roohi, Jasmin ^{[2
]}

Duong, Jimmy ^{[6
]}

Martinez, Josue ^{[2
]}

Appelbaum, Paul ^{[7
,8
]}

Klitzman, Robert ^{[9
,10
,11
,12
]}

Ottman, Ruth ^{[9
,10
,11
,12
,13
]}

Chung, Wendy K. ^{[2
]}

Wynn, Julia ^{[2
]}

机构：

[1] Sarah Lawrence Coll, Joan H Marks Grad Program Human Genet, Bronxville, NY 10708 USA

[2] Columbia Univ, Dept Pediat, Div Clin Genet, Irving Med Ctr, New York, NY 10027 USA

[3] GeneDx, 207 Perry Pkwy, Gaithersburg, MD USA

[4] Columbia Univ, Dept Pediat, Div Clin Genet, New York Presbyterian Hosp, New York, NY 10027 USA

[5] Long Isl Univ, LIU Post Genet Counseling Grad Program, Brookville, NY USA

[6] Columbia Univ, Mailman Sch Publ Hlth, Dept Biostat, New York, NY USA

[7] Columbia Univ, Dept Psychiat, Irving Med Ctr, New York, NY USA

[8] NY State Psychiat Inst, New York, NY USA

[9] Columbia Univ, GH Sergievsky Ctr, Irving Med Ctr, New York, NY USA

[10] Columbia Univ, Dept Epidemiol, Irving Med Ctr, New York, NY USA

[11] Columbia Univ, Dept Neurol, Irving Med Ctr, New York, NY USA

[12] NY State Psychiat Inst, New York, NY USA

[13] Columbia Univ, Dept Med, Irving Med Ctr, New York, NY USA

来源：

PATIENT EDUCATION AND COUNSELING | 2020年 / 103卷 / 01期

基金：

美国国家卫生研究院;

关键词：

Exome sequencing; Video education; Genetic counselor; Patient experience; BREAST-CANCER SUSCEPTIBILITY; COMPUTER-PROGRAM; CLINICAL-APPLICATION; QUESTION PROMPT; INFORMATION; ERA; COMMUNICATION; WEBSITE; DEMAND; RETURN;

D O I：

10.1016/j.pec.2019.08.018

中图分类号：

R1 [预防医学、卫生学];

学科分类号：

1004 ; 120402 ;

摘要：

Objective: Growing use of clinical exome sequencing (CES) has led to an increased burden of genomic education. Self-guided educational tools can minimize the educational burden for genetic counselors (GCs). The effectiveness of these tools must be evaluated. Methods: Parents of patients offered CES were randomized to watch educational videos before their visit or to receive routine care. Parents and GCs were surveyed about their experiences following the sessions. The responses of the video (n = 102) and no-video (n = 105) groups were compared. Results: GCs reported no significant differences between parents in the video and no-video groups on genetics knowledge or CES knowledge. In contrast, parents' scores on genetics knowledge questions were lower in the video than no-video group (p = 0.007). Most parents reported the videos were informative, and the groups did not differ in satisfaction with GCs or decisions to have CES. Conclusion: GCs and parents perceived the videos to be beneficial. However, lower scores on genetics knowledge questions highlight the need for careful development of educational tools. Practice implications: Educational tools should be developed and assessed for effectiveness with the input of all stakeholders before widespread implementation. Better measures of the effectiveness of these educational tools are needed. (c) 2019 Published by Elsevier B.V.

引用

页码：127 / 135

页数：9

共 36 条

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