Patients' and carers' perspective of the impact of heart failure on quality of life: a qualitative study

被引:9
|
作者
Nwosu, Winifred Onyinyechi [1 ]
Rajani, Ronak [2 ]
McDonaugh, Theresa [3 ]
Driscoll, Elizabeth [1 ]
Hughes, Lyndsay D. [1 ]
机构
[1] Kings Coll London, Inst Psychiat Psychol & Neurosci Ioppn, Hlth Psychol Sect, London, England
[2] Guys & St Thomas NHS Fdn Trust London, Cardiol Dept, London, England
[3] Kings Coll Hosp NHS Fdn Trust London, Cardiol Dept, London, England
关键词
Heart failure; quality of life; carers; informal carers; patients; heart failure management; DEPRESSION; PREVALENCE; UNDERSTAND; CAREGIVERS; DIAGNOSIS; OUTCOMES; HEALTH; WANT;
D O I
10.1080/13548506.2021.1922719
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Heart failure (HF) is a syndrome associated with high mortality and morbidity. HF patients tend to be at a high risk of poor clinical and psychosocial outcomes. This study aimed to capture patients' and carers perspectives of HF, the impact on their health reported QoL, and the factors associated with their poor health outcomes. To explore HF patients' and carers' views on their QoL since diagnosis. This study used a cross-sectional, qualitative design with semi-structured interviews conducted with participating patients and carers. Thirteen adults (> 18 years) with HF and 21 carers were interviewed over the telephone, following a semi-structured interview schedule. Interviews were transcribed verbatim and analysed using inductive thematic analysis. Three main themes were identified, with an overarching theme . Themes included impact on patients' lifestyle including diet, smoking and inability to part-take in social activities, adjusting to HF diagnosis and co-morbidity management, and psychological/mental health issues such as anxiety and depression. Patients with HF are at high-risk of various issues which can negatively impact their QoL. Additionally, Carers play a vital role in the management of HF patients. Effective patient centred care and better communication between patients, carers and healthcare professionals is vital in HF management.
引用
收藏
页码:1381 / 1396
页数:16
相关论文
共 50 条
  • [1] Impact of diabetes mellitus on quality of life in patients with congestive heart failure
    Fujita, Buntaro
    Lauten, Alexander
    Goebel, Bjoern
    Franz, Marcus
    Fritzenwanger, Michael
    Ferrari, Markus
    Figulla, Hans R.
    Kuethe, Friedhelm
    Jung, Christian
    QUALITY OF LIFE RESEARCH, 2012, 21 (07) : 1171 - 1176
  • [2] Anxiety, Depression and Quality of Life among Patients with Heart Failure
    Molayynejad, Shahram
    Babazadeh, Mahbubeh
    Zarea, Kourosh
    Ataeeara, Somayeh
    JOURNAL OF RESEARCH IN MEDICAL AND DENTAL SCIENCE, 2019, 7 (03): : 69 - 77
  • [3] Tools to measure quality of life and carer burden in informal carers of heart failure patients: A narrative review
    Whittingham, Katharine
    Barnes, Sarah
    Gardiner, Clare
    PALLIATIVE MEDICINE, 2013, 27 (07) : 596 - 607
  • [4] The impact of anxiety and depression on the quality of life of patients with heart failure
    Leftheriotis, C.
    Stefanadis, C.
    Tousoulis, D.
    Pitsavos, C.
    Kyritsi, H.
    ARCHIVES OF HELLENIC MEDICINE, 2015, 32 (03): : 308 - 317
  • [5] Quality of life in patients with heart failure: the perspective of primary health care
    Cesareo Naveiro-Rilo, Jose
    Dulcinea Diez-Juarez, Ma
    Flores-Zurutuza, Lourdes
    Angel Rodriguez-Garcia, Miguel
    Rebollo-Gutierrez, Francisco
    Romero Blanco, Agustin
    GACETA SANITARIA, 2012, 26 (05) : 436 - 443
  • [6] Disability and quality of life in heart failure patients: a cross-sectional study
    Garcia-Olmos, Luis
    Batlle, Maurice
    Aguilar, Rio
    Porro, Carlos
    Carmona, Montse
    Alberquilla, Angel
    Sanchez-Gomez, Luis M.
    Monge, Elena
    Lopez-Rodriguez, Ana B.
    Benito, Luis
    Banos, Nicolas
    Simon, Amaya
    Martinez-Alvarez, Miguel A.
    Luque, Eva M.
    Garcia-Benito, Cristina
    FAMILY PRACTICE, 2019, 36 (06) : 693 - 698
  • [7] Needs of multimorbid heart failure patients and their carers: a qualitative interview study and the creation of personas as a basis for a blended collaborative care intervention
    Engelmann, Petra
    Eilerskov, Natasja
    Thilsing, Trine
    Bernardini, Francesco
    Rasmussen, Sanne
    Loewe, Bernd
    Herrmann-Lingen, Christoph
    Gostoli, Sara
    Andreasson, Frida
    Rafanelli, Chiara
    Pedersen, Susanne S.
    Jaarsma, Tiny
    Kohlmann, Sebastian
    FRONTIERS IN CARDIOVASCULAR MEDICINE, 2023, 10
  • [8] Gender differences? Factors related to quality of life among patients with Heart failure
    Shih, Meng-Ling
    Tsai, Shian-Ting
    Chen, Hsing-Mei
    Chou, Fan-Hao
    Liu, Yi
    WOMEN & HEALTH, 2020, 60 (04) : 382 - 395
  • [9] The Impact of Sleep Quality and Daytime Sleepiness on Global Quality of Life in Community-Dwelling Patients With Heart Failure
    Liu, Ju-Chi
    Hung, Hsiang-Lien
    Shyu, Yuh-Kae
    Tsai, Pei-Shan
    JOURNAL OF CARDIOVASCULAR NURSING, 2011, 26 (02) : 99 - 105
  • [10] A New Instrument to Measure Quality of Life of Heart Failure Family Caregivers
    Nauser, Julie A.
    Bakas, Tamilyn
    Welch, Janet L.
    JOURNAL OF CARDIOVASCULAR NURSING, 2011, 26 (01) : 53 - 64