Prenatal counselling for congenital anomalies: a systematic review

被引:62
作者
Marokakis, Sarah [1 ]
Kasparian, Nadine A. [1 ,2 ]
Kennedy, Sean E. [1 ,3 ]
机构
[1] Univ New South Wales, Sch Womens & Childrens Hlth, Discipline Paediat, UNSW Med, Sydney, NSW, Australia
[2] Sydney Childrens Hosp Network Westmead & Randwick, Heart Ctr Children, Sydney, NSW, Australia
[3] Sydney Childrens Hosp, Nephrol, Randwick, NSW, Australia
基金
英国医学研究理事会;
关键词
HEART-DISEASE; CLEFT-LIP; DIAPHRAGMATIC-HERNIA; ANTENATAL DIAGNOSIS; SURGICAL ANOMALIES; PARENTS; INFORMATION; MALFORMATIONS; CONSULTATION; PREFERENCES;
D O I
10.1002/pd.4836
中图分类号
Q3 [遗传学];
学科分类号
071007 ; 090102 ;
摘要
ObjectivePrenatal diagnosis of fetal anomalies may arouse fear, anxiety and distress in parents, and counselling may assist parents to cope with the diagnosis. This systematic review aimed to (1) synthesise the evidence on the impact of non-genetic, prenatal counselling after fetal diagnosis of a congenital anomaly on parental knowledge and psychological adjustment and (2) identify parents' preferences for the timing and format of counselling. MethodFive electronic databases were systematically searched to identify studies assessing prenatal counselling provided to parents after prenatal diagnosis of one or more structural congenital anomalies. Data were extracted using predefined data forms, according to the preferred reporting items for systematic reviews and meta-analyses guidelines, and synthesised. ResultTwenty four articles were included for review; most articles reported results of retrospective surveys and the quality of included studies was variable. Only three studies assessed parental anxiety, and each reported a significant decrease in anxiety following prenatal counselling. Parents expressed a preference for counselling on all aspects of their baby's anomaly as soon as possible after prenatal diagnosis, and desired written, visual and web-based information resources, and support group contacts. ConclusionAlthough prenatal counselling reduced parental anxiety, further research is needed to adequately assess the impact of prenatal counselling on other psychological outcomes. (c) 2016 John Wiley & Sons, Ltd.
引用
收藏
页码:662 / 671
页数:10
相关论文
共 42 条
[1]  
Abeywardana S, CONGENITAL ANOMALIES
[2]  
Aite L, 2004, J PEDIATR SURG, V39, P174, DOI 10.1016/j.jpedsurg.2003.10.010
[3]   Multidisciplinary management of fetal surgical anomalies: The impact on maternal anxiety [J].
Aite, L ;
Trucchi, A ;
Nahom, A ;
Spina, V ;
Bilancioni, E ;
Bagolan, P .
EUROPEAN JOURNAL OF PEDIATRIC SURGERY, 2002, 12 (02) :90-94
[4]   When uncertainty generates more anxiety than severity: the prenatal experience with cystic adenomatoid malformation of the lung [J].
Aite, Lucia ;
Zaccara, Antonio ;
Trucchi, Alessandro ;
Brizzi, Christiana ;
Nahom, Antonella ;
Iacobelli, Barbara ;
Capolupo, Irma ;
Bagolan, Pietro .
JOURNAL OF PERINATAL MEDICINE, 2009, 37 (05) :539-542
[5]  
Al Husain MA, 2002, CURR PEDIAT RES, V6, P11
[6]   What women want: women's preferences of caregiver behavior when prenatal sonography findings are abnormal [J].
Alkazaleh, F ;
Thomas, F ;
Grebenyuk, J ;
Glaude, L ;
Savage, D ;
Johannesen, J ;
Caetano, M ;
Windrim, R .
ULTRASOUND IN OBSTETRICS & GYNECOLOGY, 2004, 23 (01) :56-62
[7]   Parents of Children with Congenital Heart Disease Prefer More Information than Cardiologists Provide [J].
Arya, Bhawna ;
Glickstein, Julie S. ;
Levasseur, Stephanie M. ;
Williams, Ismee A. .
CONGENITAL HEART DISEASE, 2013, 8 (01) :78-85
[8]   Pregnant women's experiences, needs, and preferences regarding information about malformations detected by ultrasound scan [J].
Asplin, Nina ;
Wessel, Hans ;
Marions, Lena ;
Ohman, Susanne Georgsson .
SEXUAL & REPRODUCTIVE HEALTHCARE, 2012, 3 (02) :73-78
[9]   Prenatal compared with postnatal cleft diagnosis: What do the parents think? [J].
Berggren, Helena ;
Hansson, Emma ;
Uvemark, Annika ;
Svensson, Henry ;
Becker, Magnus .
JOURNAL OF PLASTIC SURGERY AND HAND SURGERY, 2012, 46 (3-4) :235-241
[10]   The Development of a CD-ROM: An Aid to Fetal Cardiac Diagnosis and Counseling [J].
Caldera, Kalhara ;
Ha, Derrick ;
Menahem, Samuel .
FETAL DIAGNOSIS AND THERAPY, 2013, 33 (01) :61-64