What works when: mapping patient and stakeholder engagement methods along the ten-step continuum framework

被引:15
|
作者
Edwards, Hillary A. [1 ]
Huang, Jennifer [2 ]
Jansky, Liz [2 ]
Mullins, C. D. [1 ]
机构
[1] Univ Maryland, Sch Pharm, 220 Arch St 12th Floor, Baltimore, MD 21201 USA
[2] Westat Corp, 1600 Res Blvd, Rockville, MD 20850 USA
关键词
comparative effectiveness research; patient-centered outcome research; patient engagement; INVOLVEMENT; GUIDELINES; IMPACT; VIEWS; CARE;
D O I
10.2217/cer-2021-0043
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Aim: This study provides a recommended 'patient engagement translation table' that identifies evidence-based methods for meaningful patient engagement along a ten-step framework for continuous engagement. Materials & methods: We used a mixed methods research design to collect data on preferred engagement methods, including an environmental scan of available literature, interviews and focus groups with patient-centered outcomes research stakeholders to match methods with research steps and a modified Delphi process with subject matter experts to create the final translation table. Results: Evidence-based engagement methods included community partnerships, focus groups, interviews, meetings, sharing print materials, social media, storytelling, surveys and including patients as research team members. Conclusion: Our recommended patient engagement translation table is designed to assist investigators in determining appropriate engagement methods for meaningful interactions with stakeholders.
引用
收藏
页码:999 / 1017
页数:19
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