Ethical Considerations for Discrete Choice Experiments with Caregivers

被引：2

作者：

Illes, Judy ^{[1
]}

Lawson, Ashley ^{[1
]}

McDonald, Patrick J. ^{[1
,2
]}

机构：

[1] Univ British Columbia, Dept Med, Div Neurol, Neuroeth Canada, 2211 Wesbrook Mall,Room S 124, Vancouver, BC V6T 2B5, Canada

[2] Univ Manitoba, Max Rady Coll Med, Dept Surg, Sect Neurosurg, Winnipeg, MB, Canada

来源：

JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS | 2022年 / 17卷 / 04期

基金：

美国国家卫生研究院;

关键词：

research ethics; neuroethics; vulnerable populations; epilepsy; discrete choice experiment; HEALTH-CARE; DESIGN;

D O I：

10.1177/15562646221112339

中图分类号：

B82 [伦理学（道德学）];

学科分类号：

摘要：

We discuss research ethics challenges experienced while running a discrete choice experiment administered to caregivers of children with treatment resistant pediatric epilepsy. We highlight ethical considerations around the study design of the discrete choice experimental paradigm that pertain to vulnerability of and caregiving burden on the population, imbalance of benefit-to-load of participation, and limitations of cultural meaningfulness and generalizability.

引用

页码：426 / 430

页数：5

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