Do environmental barriers affect the parent-reported quality of life of children and adolescents with cerebral palsy?

被引:27
作者
Badia, Marta [1 ]
Begona Orgaz, M. [2 ]
Gomez-Vela, Maria [1 ]
Verdugo, Miguel A. [1 ]
Ullan, Ana M. [3 ]
Longo, Egmar [4 ]
机构
[1] Univ Salamanca, Fac Psychol, Inst Community Integrat INICO, Avda Merced 109-131, Salamanca 37005, Spain
[2] Univ Salamanca, Fac Psychol, Salamanca 37005, Spain
[3] Univ Salamanca, Dept Social Psychol, Salamanca 37005, Spain
[4] Univ Fed Rio Grande do Norte, FACISA, Hlth Children, Natal, RN, Brazil
关键词
Environmental barriers; Quality of life; Cerebral palsy; Children; Adolescents; GROSS MOTOR FUNCTION; HEALTH-STATUS; ATTITUDINAL ENVIRONMENT; LEISURE ACTIVITIES; PARTICIPATION; DETERMINANTS; FACILITATORS; DISABILITIES; PAIN; CLASSIFICATION;
D O I
10.1016/j.ridd.2015.12.011
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
Physical, social, and attitudinal environment may affect the quality of life (QoL) of children and adolescents with cerebral palsy (CP). Participants in this study included parents of 206 children and adolescents with CP (55.8% males) aged 8-18 years (M = 11.96, SD = 3). Distribution according to the Gross Motor Function Classification System (GMFCS) was 24.3% level I, 18% level II, 18% level III, 12.6% level IV, and 27.2 level V. Environmental barriers were assessed with the Spanish version of the European Child Environment Questionnaire (ECEQ), and QoL was assessed with the KIDSCREEN parents' version. The results of the correlation analysis revealed that GMFCS level, IQ and type of schooling are significantly correlated with QoL. Barriers were also associated with QoL. A series of hierarchical regression analyses indicated that, after controlling for the effect of child and parent's variables, barriers at home and at school significantly contribute to QoL. These findings underscore the importance of providing interventions to produce environmental changes that contribute to the improvement of QoL. (C) 2015 Elsevier Ltd. All rights reserved.
引用
收藏
页码:312 / 321
页数:10
相关论文
共 58 条
[1]  
[Anonymous], 2007, HDB PARLIAMENTARIANS
[2]  
[Anonymous], 2011, World Report on Disability, P3
[3]  
[Anonymous], INT CLASS FUNCT DIS
[4]   Parent-reported quality of life of children with cerebral palsy in Europe [J].
Arnaud, Catherine ;
White-Koning, Melanie ;
Michelsen, Susan Ishoy ;
Parkes, Jackie ;
Parkinson, Kathryn ;
Thyen, Ute ;
Beckung, Eva ;
Dickinson, Heather O. ;
Fauconnier, Jerome ;
Marcelli, Marco ;
McManus, Vicki ;
Colver, Allan .
PEDIATRICS, 2008, 121 (01) :54-64
[5]  
Aymerich Marta, 2005, Gac Sanit, V19, P93, DOI 10.1157/13074363
[6]   Environmental needs and facilitators available for children and adolescents with cerebral palsy: adaptation and validation of the European Child Environment Questionnaire (ECEQ) Spanish version [J].
Badia, Marta ;
Orgaz, Begona ;
Gomez-Vela, Maria ;
Longo, Egmar .
DISABILITY AND REHABILITATION, 2014, 36 (18) :1536-1548
[7]   Pain, motor function and health-related quality of life in children with cerebral palsy as reported by their physiotherapists [J].
Badia, Marta ;
Riquelme, Inmaculada ;
Orgaz, Begona ;
Acevedo, Raquel ;
Longo, Egmar ;
Montoya, Pedro .
BMC PEDIATRICS, 2014, 14
[8]   The influence of participation in leisure activities on quality of life in Spanish children and adolescents with Cerebral Palsy [J].
Badia, Marta ;
Longo, Egmar ;
Begona Orgaz, M. ;
Gomez-Vela, Maria .
RESEARCH IN DEVELOPMENTAL DISABILITIES, 2013, 34 (09) :2864-2871
[9]   Health status of children with cerebral palsy living in Europe: a multi-centre study [J].
Beckung, E. ;
White-Koning, M. ;
Marcelli, M. ;
McManus, V. ;
Michelsen, S. ;
Parkes, J. ;
Parkinson, K. ;
Thyen, U. ;
Arnaud, C. ;
Fauconnier, J. ;
Colver, A. .
CHILD CARE HEALTH AND DEVELOPMENT, 2008, 34 (06) :806-814
[10]   The measurement of health-related quality of life (HRQL) in children with cerebral palsy [J].
Bjornson, KF ;
McLaughlin, JF .
EUROPEAN JOURNAL OF NEUROLOGY, 2001, 8 :183-193