Living arrangements and satisfaction of current arrangement among autistic adults reported by autistic individuals or their caregivers

被引:4
作者
Song, Wei [1 ]
Nonnemacher, Stacy L. [2 ]
Miller, Kaitlin Koffer [3 ]
Anderson, Kristy [4 ]
Shea, Lindsay L. [4 ]
机构
[1] Temple Univ, Coll Publ Hlth, 1700 N Broad St,Suite 313, Philadelphia, PA 19122 USA
[2] Bur Supports Autism & Special Populat, Penn Dept Human Serv, Off Dev Programs, Harrisburg, PA USA
[3] Drexel Univ, Policy & Analyt Ctr, AJ Drexel Autism Inst, Philadelphia, PA 19104 USA
[4] Drexel Univ, AJ Drexel Autism Inst, Philadelphia, PA 19104 USA
关键词
adults; autism spectrum disorder; living arrangement; satisfaction of living arrangement; QUALITY-OF-LIFE; SPECTRUM DISORDER; YOUNG-ADULTS; OUTCOMES; CHILDREN; EXPERIENCES; PREVALENCE; HEALTH;
D O I
10.1111/jar.13003
中图分类号
G44 [教育心理学];
学科分类号
0402 ; 040202 ;
摘要
Background Living arrangements is an essential component of the social environments for autistic adults. The need to understanding the status and experience of living arrangements has been highlighted. Aim This study examined living arrangements and satisfaction with current arrangements of autistic adults reported by autistic adults or caregivers of autistic adults. Methods This study used data from a statewide survey of autistic adults or caregivers. Results Older autistic adults and those employed and had higher financial resources were more likely to live alone or with a roommate or spouse than to live with family or in a supervised setting. Correlates of greater satisfaction included being young, either men or women (vs. non-binary adults), public insurance, fewer service needs, no or one mental health diagnosis (vs. two or more), no psychiatric emergency room or hospitalisation history, and living with a roommate or spouse (vs. living with family). Conclusion This cross-sectional study adds to the literature on the status of living arrangements and satisfaction with living arrangements among autistic adults. Future research is needed to investigate contributing factors to the satisfaction of living arrangements and quality of life among autistic adults.
引用
收藏
页码:1174 / 1185
页数:12
相关论文
共 45 条
[31]   The Persistence of High Levels of Living Alone Among Adults with Disabilities in Sweden, 1993-2011 [J].
Sandstrom, Glenn ;
Namatovu, Fredinah ;
Ineland, Jens ;
Larsson, Daniel ;
Ng, Nawi ;
Stattin, Mikael .
POPULATION RESEARCH AND POLICY REVIEW, 2021, 40 (02) :163-185
[32]   Services for Adults With Autism Spectrum Disorder: a Systems Perspective [J].
Shattuck, Paul T. ;
Garfield, Tamara ;
Roux, Anne M. ;
Rast, Jessica E. ;
Anderson, Kristy ;
Hassrick, Elizabeth McGhee ;
Kuo, Alice .
CURRENT PSYCHIATRY REPORTS, 2020, 22 (03)
[33]   Satisfaction, safety, and supports: Comparing people with disabilities' insider experiences about participation in institutional and community living [J].
Sheth, Alisa Jordan ;
McDonald, Katherine E. ;
Fogg, Louis ;
Conroy, Nicole E. ;
Elms, Edward H. J. ;
Kraus, Lewis E. ;
Frieden, Lex ;
Hammel, Joy .
DISABILITY AND HEALTH JOURNAL, 2019, 12 (04) :712-717
[34]  
Social Security Administration, 2021, SSI ANN STAT REP 202
[35]   Living arrangements and community participation among autistic adults: Exploring the possible influences of living alone or with others [J].
Song, Wei ;
Salzer, Mark S. ;
Nonnemacher, Stacy L. ;
Miller, Kaitlin Koffer ;
Shea, Lindsay L. .
RESEARCH IN DEVELOPMENTAL DISABILITIES, 2022, 124
[36]   Parents' and young adults' perspectives on transition outcomes for young adults with autism [J].
Sosnowy, Collette ;
Silverman, Chloe ;
Shattuck, Paul .
AUTISM, 2018, 22 (01) :29-39
[37]   Proxy respondents and the reliability of the Quality of Life Questionnaire Empowerment factor [J].
Stancliffe, RJ .
JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 1999, 43 :185-193
[38]   "They Thought It Was an Obsession": Trajectories and Perspectives of Autistic Transgender and Gender-Diverse Adolescents [J].
Strang, John F. ;
Powers, Meredith D. ;
Knauss, Megan ;
Sibarium, Ely ;
Leibowitz, Scott F. ;
Kenworthy, Lauren ;
Sadikova, Eleonora ;
Wyss, Shannon ;
Willing, Laura ;
Caplan, Reid ;
Pervez, Noor ;
Nowak, Joel ;
Gohari, Dena ;
Gomez-Lobo, Veronica ;
Call, David ;
Anthony, Laura G. .
JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2018, 48 (12) :4039-4055
[39]   Initial Clinical Guidelines for Co-Occurring Autism Spectrum Disorder and Gender Dysphoria or Incongruence in Adolescents [J].
Strang, John F. ;
Meagher, Haley ;
Kenworthy, Lauren ;
de Vries, Annelou L. C. ;
Menvielle, Edgardo ;
Leibowitz, Scott ;
Janssen, Aron ;
Cohen-Kettenis, Peggy ;
Shumer, Daniel E. ;
Edwards-Leeper, Laura ;
Pleak, Richard R. ;
Spack, Norman ;
Karasic, Dan H. ;
Schreier, Herbert ;
Balleur, Anouk ;
Tishelman, Amy ;
Ehrensaft, Diane ;
Rodnan, Leslie ;
Kuschner, Emily S. ;
Mandel, Francie ;
Caretto, Antonia ;
Lewis, Hal C. ;
Anthony, Laura G. .
JOURNAL OF CLINICAL CHILD AND ADOLESCENT PSYCHOLOGY, 2018, 47 (01) :105-115
[40]   To be understood: Transitioning to adult life for people with Autism Spectrum Disorder [J].
Thompson, Craig ;
Bolte, Sven ;
Falkmer, Torbjorn ;
Girdler, Sonya .
PLOS ONE, 2018, 13 (03)