Design of a quality of life questionnaire in Spanish for children with chronic kidney disease

被引：0
作者：
Aparicio Lopez, C. [2 ]
Fernandez Escribano, A. [1 ]
Garrido Cantanero, G.
Luque de Pablos, A. [1 ]
Izquierdo Garcia, E. [1 ]
机构：
[1] Hosp Gen Univ Gregorio Maranon, Serv Nefrol Infantil, Madrid, Spain
[2] Hosp Getafe, Madrid, Spain
来源：
NEFROLOGIA | 2010年 / 30卷 / 02期
关键词：
Health-related quality of life; Children; Specific disease questionnaire; Renal disease; HEALTH; INSTRUMENT; ISSUES; ILLNESS;
D O I：
暂无
中图分类号：
R5 [内科学]; R69 [泌尿科学（泌尿生殖系疾病）];
学科分类号：
1002 ; 100201 ;
摘要：
Treatment of chronic kidney disease in childhood must include assessment of social and psychological aspects involved in the perceived quality of life of the child and its family. Our objective has been to design a specific tool in Spanish for measuring quality of life in pediatric patients with chronic kidney disease, since there is not a validated test for children at the moment. Results: We designed a specific questionnaire for kidney disease in children based on the test of quality of life for adults with kidney disease (KDQOL-SFTM) and on the test of quality of life for children with epilepsy (CAVE) adapting them to children with kidney disease, denominating TECAVNER (Test of Quality of Life in Children with Kidney Disease). Reliability of this questionnaire determined by alfa Cronbach coefficient was 0,92. Limitations: questionnaire determined by Test-retest reliability and construct validity were not conducted. In conclusion, this is a first approach for design a specific health related quality of life test in Spanish for children with chronic kidney disease.
引用
收藏
页码：168 / 176
页数：9
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