Factors influencing engagement in an online support group for family caregivers of individuals with advanced cancer

被引：10

作者：

Washington, Karla T. ^{[1
]}

Oliver, Debra Parker ^{[1
]}

Benson, Jacquelyn J. ^{[2
]}

Rolbiecki, Abigail J. ^{[1
]}

Jorgensen, Lucas A. ^{[1
]}

Cruz-Oliver, Dulce M. ^{[3
]}

Demiris, George ^{[4
,5
]}

机构：

[1] Univ Missouri, Dept Family & Community Med, MA306 Med Sci Bldg,DC032-00, Columbia, MO 65212 USA

[2] Univ Missouri, Dept Human Dev & Family Sci, Columbia, MO USA

[3] Johns Hopkins Univ, Sch Med, Dept Med, Baltimore, MD 21205 USA

[4] Univ Penn, Sch Nursing, Dept Biobehav & Hlth Sci, Philadelphia, PA 19104 USA

[5] Univ Penn, Sch Med, Dept Biostat Epidemiol & Informat, Philadelphia, PA 19104 USA

来源：

JOURNAL OF PSYCHOSOCIAL ONCOLOGY | 2020年 / 38卷 / 03期

关键词：

Cancer; caregivers; engagement; hospice; Internet; support groups; PAIN MANAGEMENT; SOCIAL SUPPORT; INTERVENTIONS; SYMPTOMS; ANXIETY; CARE; DEPRESSION; EXPERIENCE; STRESS; BURDEN;

D O I：

10.1080/07347332.2019.1680592

中图分类号：

B84 [心理学];

学科分类号：

04 ; 0402 ;

摘要：

Objective: To explore factors that influenced engagement in an online support group (OSG) for family caregivers of hospice patients with cancer. Design: Secondary qualitative data analysis. Sample: 58 family caregivers of hospice patients with advanced cancer. Methods: Template analysis of individual family caregiver interviews. Findings: Emotional isolation and caregiving downtime positively influenced engagement, while reluctance to share personal information, a short timeframe of participation in the OSG, and caregiving commitments were negatively influential. While the group facilitation and secure privacy settings of the OSG were viewed positively, reactions to the OSG platform and group tone were mixed. Information on pain and the dying process was found to be particularly engaging.

引用

页码：235 / 250

页数：16

共 47 条

[1] Legacy Activities as Interventions Approaching the End of Life [J].

Allen, Rebecca S. ;

Hilgeman, Michelle M. ;

Ege, Margaret A. ;

Shuster, John L., Jr. ;

Burgio, Louis D. .

JOURNAL OF PALLIATIVE MEDICINE, 2008, 11 (07) :1029-1038

[2]

[Anonymous], ESSENTIALS HUMAN BEH

[3]

[Anonymous], N AM PRIM CAR RES GR

[4]

[Anonymous], FAM CAR AG AM

[5]

[Anonymous], CANC SUPP GROUPS

[6]

[Anonymous], 2018, FACTAND FIG

[7]

[Anonymous], ATLANTIC WEB SITE

[8] Fostering empowerment in online support groups [J].

Barak, Azy ;

Boniel-Nissim, Meyran ;

Suler, John .

COMPUTERS IN HUMAN BEHAVIOR, 2008, 24 (05) :1867-1883

[9] Loss of lifestyle: health behaviour and weight changes after becoming a caregiver of a family member diagnosed with ovarian cancer [J].

Beesley, Vanessa L. ;

Price, Melanie A. ;

Webb, Penelope M. .

SUPPORTIVE CARE IN CANCER, 2011, 19 (12) :1949-1956

[10]

Centers for Medicare & Medicaid Services, 2014, STAT OP MAN APP M GU

← 1 2 3 4 5 →