Struggling to maintain individuality - Describing the experience of food in nursing homes for people with dementia

被引:40
作者
Milte, Rachel [1 ,2 ]
Shulver, Wendy [1 ,2 ]
Killington, Maggie [1 ]
Bradley, Clare [1 ,2 ]
Miller, Michelle [3 ]
Crotty, Maria [1 ,2 ]
机构
[1] Flinders Univ S Australia, Rehabil Aged & Extended Care, Adelaide, SA, Australia
[2] NHMRC Cognit Decline Partnership Ctr, Sydney, NSW, Australia
[3] Flinders Univ S Australia, Nutr & Dietet, Adelaide, SA, Australia
基金
英国医学研究理事会;
关键词
Long-term care; Quality of care; Nutrition and feeding issues; Qualitative research; Dementia; LONG-TERM-CARE; RESIDENTIAL AGED CARE; QUALITY-OF-LIFE; PUREED FOOD; OLDER-PEOPLE; PERSPECTIVES; NUTRITION; STAFF; DYSPHAGIA; COMMUNITY;
D O I
10.1016/j.archger.2017.05.002
中图分类号
R592 [老年病学]; C [社会科学总论];
学科分类号
03 ; 0303 ; 100203 ;
摘要
Purpose of the study: To describe the food and dining experience of people with cognitive impairment and their family members in nursing homes. Design and methods: Interviews and focus groups with people with cognitive impairment and their family members (n = 19). Thematic analysis was undertaken using NVivo10 data analysis software package to determine key themes. Results: The main themes identified tracked a journey for people with cognitive impairment in nursing homes, where they initially sought to have their individual needs and preferences recognised and heard, expressed frustration as they perceived growing barriers to receiving dietary care which met their preferences, and ultimately described a deterioration of the amount of control and choice available to the individual with loss of self-feeding ability and dysphagia. Implications: Further consideration of how to incorporate individualised dietary care is needed to fully implement person-centred care and support the quality of life of those receiving nursing home care.
引用
收藏
页码:52 / 58
页数:7
相关论文
共 51 条
[1]  
Adams Katy, 2013, Journal of Nutrition in Gerontology and Geriatrics, V32, P213, DOI 10.1080/21551197.2013.810560
[2]   Optimising nutrition in residential aged care: A narrative review [J].
Agarwal, Ekta ;
Marshall, Skye ;
Miller, Michelle ;
Isenring, Elisabeth .
MATURITAS, 2016, 92 :70-78
[3]  
Alzheimer Europe, 2011, ETH DEM RES ALZH EUR
[5]  
[Anonymous], 2007, NICE SCIE GUID SUPP
[6]   Exploring the mealtime experience in residential care settings for older people: an observational study [J].
Barnes, Sarah ;
Wasielewska, Anna ;
Raiswell, Christine ;
Drummond, Barbara .
HEALTH & SOCIAL CARE IN THE COMMUNITY, 2013, 21 (04) :442-450
[7]   Measuring quality of life [J].
Beckie, TM ;
Hayduk, LA .
SOCIAL INDICATORS RESEARCH, 1997, 42 (01) :21-39
[8]  
Bennett Michelle K., 2014, Journal of Nutrition in Gerontology and Geriatrics, V33, P325, DOI 10.1080/21551197.2014.963275
[9]   'Two dead frankfurts and a blob of sauce': The serendipity of receiving nutrition and hydration in Australian residential aged care [J].
Bernoth, Maree Anne ;
Dietsch, Elaine .
COLLEGIAN, 2014, 21 (03) :171-177
[10]  
Cassens D, 1996, NUTR REV, V54, pS51