A framework for creating standardized outcome measures for patient registries

被引:0
作者
Gliklich, Richard E. [1 ]
Leavy, Michelle B. [2 ]
Karl, Jannette [2 ]
Campion, Daniel M. [3 ]
Levy, Daniel [4 ]
Berliner, Elise [5 ]
机构
[1] Harvard Univ, Sch Med, Massachusetts Eye & Ear Infirm, Boston, MA 02114 USA
[2] Quintiles, Cambridge, MA 02139 USA
[3] Quintiles, Rockville, MD 20852 USA
[4] Amazing Charts, Boston, MA 02199 USA
[5] Agcy Healthcare Res & Qual, Rockville, MD 20850 USA
基金
美国医疗保健研究与质量局;
关键词
comparative effectiveness research; conceptual model; outcome measure; outcome measurement; patient outcomes; patient registry; CLINICAL-TRIALS;
D O I
10.2217/CER.14.38
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Aim: Our objectives were to create a conceptual framework for development of standard outcome measures and to design and pilot test a tool for displaying outcome measures. Materials & methods: Information on outcome measures used in registries was gathered through stakeholder discussions, which informed the development of the outcome measurement framework and the related tool. Results: The outcome measurement framework is a conceptual model for how information relevant to evaluating patient outcomes may be defined and collected in a standard way for a broad range of health areas. The related tool facilitates collecting, displaying and searching for information on outcome measures. Conclusion: The model developed through this process offers a framework that can be used to define outcome measures in a standard way across medical conditions.
引用
收藏
页码:473 / 480
页数:8
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