Which information relatives of patients with cancer are searching for? Are the findings helpful for coping and care?

被引:0
作者
Kirschning, Silke [1 ]
Von Kardorff, Ernst [1 ]
机构
[1] Humboldt Univ, Abr Rehabil Soziol, Inst Rehabil Wissensch, Berlin, Germany
关键词
cancer patients; family members; Internet use; online survey; online questionnaire; breast cancer; prostate cancer; doctor-patient relationship; communication;
D O I
10.1007/s00063-007-1014-7
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
The question of how the relatives and friends of women with breast cancer and men with prostate cancer research illness-related subjects was examined by means of an online questionnaire. The relatives and friends use the internet primarily to inform themselves, but also to convey information further to the sick person. Often, they research for the patient who is not familiar with the medium. The relatives judge the internet as a great help. Medical themes are in the first positions of the item list. Half of the respondents recommend their relatives treatment possibilities. Concerning the therapy we see, that the illness-relevant internet usage leads thus more often to a reinforcement of the decision concerned than to noncompliance. While this interest dominates the net research, within the medical consultation most of the respondents expect attention to psychosocial matters next to the sharing of medical information. However, if they accompany their relatives to medical consultations and want to discuss net information, less than half notice ail interested reaction from the physician and in one third of the respondents there is the predominating impression of the physician being overwhelmed. It is evident that relatives of cancer patients play an important role in the work of no-ending care, but still it is not payed enough attention to this fact in the daily work at the hospital.
引用
收藏
页码:136 / 140
页数:5
相关论文
共 19 条
  • [1] [Anonymous], 2003, EUROPEAN PATIENT FUT
  • [2] [Anonymous], STAT ANWENDUNGEN INT
  • [3] Virtually he@lthy: The impact of Internet use on disease experience and the doctor-patient relationship
    Broom, A
    [J]. QUALITATIVE HEALTH RESEARCH, 2005, 15 (03) : 325 - 345
  • [4] CORBIN J, 1988, WEITERLEBEN LERNEN
  • [5] FALLER H, 1995, Z PSYCHOSOM MED PSYC, V41, P141
  • [6] Gaisser A, 2004, GEMEINSAME ENTSCHEID, P29
  • [7] Hautzinger M, 1995, PSYCHOTHERAPEUT, V40, P313
  • [8] Hurrelmann Klaus, 2002, GESCHLECHT GESUNDHEI
  • [9] JAHN K, 2004, INTERNET MEDIZININFO, P85
  • [10] KIRSCHNING S, 2007, IN PRESS KREBSKRANKE, V138