Changes over time in the quality of life, prolonged grief and family strain of family caregivers of patients in vegetative state: A pilot study

被引：22

作者：

Bastianelli, Alessia ^{[1
]}

Gius, Erminio ^{[2
]}

Cipolletta, Sabrina ^{[2
]}

机构：

[1] Univ Verona Ca Vignal 2, Verona, Italy

[2] Univ Padua, Via Venezia 8, I-35131 Padua, Italy

来源：

JOURNAL OF HEALTH PSYCHOLOGY | 2016年 / 21卷 / 05期

关键词：

caregivers; family; health psychology; time; vegetative state; MINIMALLY CONSCIOUS STATE; DISORDERS; BURDEN; VALIDATION; MANAGEMENT; CANCER; SCALE; CQOLC; COMA;

D O I：

10.1177/1359105314539533

中图分类号：

B849 [应用心理学];

学科分类号：

040203 ;

摘要：

This study explored changes over time and in the internal standards of the quality of life, prolonged grief and family strain of informal caregivers of patients in vegetative state. Data obtained from 52 caregivers showed high levels of prolonged grief and family strain, and low quality of life. A decrease of caregivers' quality of life and an increase of family strain were found by adopting a response shift procedure. Only prolonged grief did not change during time. Clinical intervention with the caregivers of vegetative state patients should be differentiated on the basis of the duration of the caring experience.

引用

页码：844 / 852

页数：9

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